Olga Zvonareva
Dados Biográficos
| ID | 97956 |
|---|---|
| NOME | Olga Zvonareva |
| PRENOMES | Olga |
| SOBRENOME | Zvonareva |
| ASSINATURA | ZVONAREVA O |
| AFILIAÇÕES | Maastricht University |
| ORCID | 0000-0001-5548-7491 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 29 |
| TOTAL DE CITAÇÕES | 7 |
| TOTAL COMO AUTOR | 28 |
| TOTAL COMO EDITOR | 1 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2015 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 1 |
Do-it-yourself hormones
On the continuum of patient participation between ‘’informed patients’’ and ‘’patients in control’’, DIY pharmaceuticals are considered the most radical because they are produced outside regular medical professional and regulatory contexts. While some see DIY pharmaceuticals as an important contribution to making pharmaceuticals more accessible, others are concerned because they circumvent established procedures for assessing safety and efficacy.…
Ambivalence and Agonism of Public Participation in Contemporary Societies
In this editorial we introduce the thematic issue “Public Participation Amidst Hostility: When the Uninvited Shape Matters of Collective Concern.” The aim of this issue is twofold. First, it takes stock of various ways in which public participation can be hindered, directly and indirectly. Second, it investigates different kinds of participatory practices that emerge in situations of hostility towards public participation. Given that participatio…
Truck drivers and intermediaries of migration between Central Asia and the EU
Migration from Central Asia to European Union (EU) countries has increased rapidly over the past years. Intermediaries play an important role in this migration. This paper focuses on migrant truck drivers from Uzbekistan and Kyrgyzstan in the EU and their experiences with intermediaries, which may be acquaintances willing to help in the search for occupation abroad, organized informal brokers, or licensed agencies. Thematic analysis of 20 intervi…
Participation in Times of War
Do digital media support or undermine democracy and freedom? Building on recent scholarship that highlights the diversity of digital media’s effects, this article begins with the premise that digital media do not clearly shape political life in contemporary societies one way or another but are instead ambivalent. The article seeks to explicate how exactly the ambivalence of digital media emerges and to arrive at a suitable conceptualisation of th…
Pioneering new migration routes
A new stream of migration from Central Asia to countries of the European Union is being spearheaded by workers employed in the truck driving industry. This is part of a trend of increasing diversification of the destinations of migration from Central Asia. This paper examines how drivers exert their agency when choosing between migration destinations. To do so, we interviewed twenty Kyrgyz and Uzbek drivers about the differences they perceived be…
Invisible Participation
Scholars have paid much attention to patients' participation in healthcare, such as engagement in activities developed by healthcare providers and involvement in patient activism. Our study draws attention to a type of patient participation that has attracted less academic interest-patients' mundane practices of survival. Bringing together insights from political anthropology, science and technology studies, and the sociology of health, we argue …
The Trading Zones of Patient Participation
This article investigates public issue formation catalyzed by Russian patient organizations (POs) that aim to change healthcare rules and practices following patients' needs and expectations. Drawing on the socio-ontological approach of science and technology studies, which posits that issues do not exist independently of efforts to address them, we identify three main stages of public issue formation in the studied situation: (1) from individual…
Evidence-based medicine and private clinics in Russia
Critical social science research demonstrates that evidence-based medicine (EBM) emerged through its proponents' deliberate efforts to defend EBM's knowledge production methods as credible and independent of commercial interests. In the present study, we expand this discussion by showing how EBM is co-produced with profit-making within the context of private clinics in Russia. Drawing on the ethnography of three private clinics in Russia, we expl…
To dwell or drown? Private clinics in the swampy infrastructure of cancer care in Russia
Standardising Patient Engagement in Drug Development
Initiatives to increase patient engagement in drug development have recently been accompanied by growing calls for standardisation due to considerable uncertainties about how to best perform patient engagement and use it in drug marketing applications. We focus on materials developed by the Patient Focused Medicines Development (PFMD), a multi-stakeholder group founded in 2015, to investigate what these materials seek to standardize on patient en…
Ecologising Invited and Uninvited Patient Participation in Russia
INTRODUCTION: Public participation can be both supported and limited by decision-makers. Therefore, citizens either participate in top-down approved formats or have to turn towards subversion. These different participation practices, called invited and uninvited, are often treated by researchers as mutually exclusive. In this article, we present the case of patient organisations' involvement in various state-controlled deliberation bodies in Russ…
Knowledge‐based representation
INTRODUCTION: Recently, different actors have intensified their efforts to make drug development more participatory. They have produced many frameworks, tools and dedicated fora, where patients are portrayed as relevant stakeholders to be involved throughout the entire drug development trajectory. To better understand what such participatory efforts entail, in this article, we investigate how patient representation is configured in drug developme…
Formatting patient knowledge and channelling participation
Patient experiential knowledge is important for the quality and responsiveness of healthcare systems. However, it is not rare for patients to struggle to have their knowledge recognised as credible and valuable. This study explores how patient organisations work to adjust patient knowledge to formats recognisable and acceptable by healthcare governance decision-makers. Using the case of patient organisations in Russia, we show that such formattin…
We Know Best Because Our Skin Is in the Game”
In recent years, critical social science scholarship has expanded our understanding of public participation beyond talk‐based and institutionally organised formats, such as citizen juries and focus groups. Building on these insights and relying on digital ethnography, we studied the practices of an online community of transgender activists producing their own hormones to broaden access to hormone replacement therapy (HRT). We argue that they purs…
Patient engagement in drug development
For many years, the field of drug development remained insulated from patient engagement initiatives that became commonplace in healthcare, it is currently experiencing a participatory turn. This has been informed by a re-evaluation of the patients' insights and of the roles they can play in drug development, with both democratising and technocratic arguments invoked in support of their more substantial engagement. This article problematises the …
Medical professionals' agency and pharmaceuticalization
In the contemporary world pharmaceuticals have become a go-to answer to a growing number of questions. This process of pharmaceuticalization gives rise to a concern with the increasing influence of the pharmaceutical industry on physicians' decision-making. Critics suggest that companies' for-profit-interests might compromise the integrity of medical practice. This article employs qualitative research methodology to explore how Russian physicians…
Patient engagement in drug development
This paper focuses on the recent interest in patient engagement (PE) in drug development, expressed in the growing number of calls for engagement, novel organizations dedicated to changing the culture of drug development, and guidelines for directing and evaluating PE. By reviewing materials produced by actors in the field and analyzing publications reporting on PE initiatives, I map sites of action where PE is being conceived and practiced, deli…
Speaking of Epistemic Injustice
In this article, we reply to ‘Ethics and Epistemic Injustice in the Global South’ (Kaur et al. 2023), a response to the original article ‘Covert Qualitative Research as a Method to Study Human Rights Under Authoritarian Regimes’ (Hopman 2022). Our reply is written by authors who have expertise and direct experience with the issues at stake (authoritarianism, Global North/Global South relations, covert research methods, epistemic injustice). We sh…
Reflections on fluidity and stability
Purpose The distinction between formality and informality has been a topic central for many scholarly fields. Without rejecting the usefulness of this distinction, the authors argued that instead of analyzing an empirical situation in terms of what is formal and what is informal, it could sometimes be fruitful to focus on what is stable and what is fluid. Design/methodology/approach This paper reports the results of review and analysis of seconda…
Patients' work and fluid trajectories
Health policy studies usually conceptualise access to medicines as a result of the institutional configuration of policies, legislation, and pharmaceutical markets. This study adopts a different approach that stems from the sociology of health and Science and Technology Studies (STS). Based on an ethnographically inspired qualitative research of access practices of patients with oncological and rare diseases in Russia, we argue that access to med…
The Pragmatic Turn in Clinical Research
How does knowledge obtained in clinical trials apply to the actual treatment of patients? This question has recently acquired a new significance amidst complaints about the limited ability of trial results to improve clinical practice. Pragmatic clinical trials have been advocated to address this problem. In this article, I trace the emergence of the pragmatic turn in clinical research, starting from the first mention of ‘pragmatic trial’ in 1967…
Experiencing Syndemic
Tuberculosis (TB) remains a major global public health problem that has become a crisis fuelled by HIV and the increasing occurrence of antimicrobial resistance. What has been termed the biosocial nature of TB challenges effective control of the disease. Yet, biosocial interactions involved in the persistence of TB in diverse settings are difficult to systematically account for. The recently developed framework of syndemics provides a way to capt…
Health, Technologies, and Politics in Post-Soviet Settings
International conference “Social sciences and health innovations
(Re)configuring research value
Patients' work and fluid trajectories
Health policy studies usually conceptualise access to medicines as a result of the institutional configuration of policies, legislation, and pharmaceutical markets. This study adopts a different approach that stems from the sociology of health and Science and Technology Studies (STS). Based on an ethnographically inspired qualitative research of access practices of patients with oncological and rare diseases in Russia, we argue that access to med…
Participation in Times of War
Do digital media support or undermine democracy and freedom? Building on recent scholarship that highlights the diversity of digital media’s effects, this article begins with the premise that digital media do not clearly shape political life in contemporary societies one way or another but are instead ambivalent. The article seeks to explicate how exactly the ambivalence of digital media emerges and to arrive at a suitable conceptualisation of th…
Evidence-based medicine and private clinics in Russia
Critical social science research demonstrates that evidence-based medicine (EBM) emerged through its proponents' deliberate efforts to defend EBM's knowledge production methods as credible and independent of commercial interests. In the present study, we expand this discussion by showing how EBM is co-produced with profit-making within the context of private clinics in Russia. Drawing on the ethnography of three private clinics in Russia, we expl…
Speaking of Epistemic Injustice
In this article, we reply to ‘Ethics and Epistemic Injustice in the Global South’ (Kaur et al. 2023), a response to the original article ‘Covert Qualitative Research as a Method to Study Human Rights Under Authoritarian Regimes’ (Hopman 2022). Our reply is written by authors who have expertise and direct experience with the issues at stake (authoritarianism, Global North/Global South relations, covert research methods, epistemic injustice). We sh…
Engaging Diverse Social and Cultural Worlds
The issue of benefits in international clinical research is highly controversial. Against the background of wide recognition of the need to share benefits of research, the nature of benefits remains strongly contested. Little is known about the perspectives of research populations on this issue and the extent to which research ethics discourses and guidelines are salient to the expectations and aspirations existing on the ground. This exploratory…
Developing Clinical Research Relationship
The nature of the relationship between clinical investigator and research participant continues to be contested. The related discussions have largely focused on the doctor‐researcher dichotomy thought to permeate the work of a clinical investigator with research participants, whom in turn occupy two corresponding roles: patient and subject. This paper contributes to current debates on the topic by providing a voice to research participants, whose…
International clinical trials, cardiovascular disease and treatment options in the Russian Federation
International conference “Social sciences and health innovations
(Re)configuring research value
Life by the river
The One Health movement aims to provide integrated responses to problems that emerge at the intersections of human, animal, and ecological health. However, it risks derailment due to over-reliance on top-down global responses and generalisations that often fail to fit real-world settings. In this article, we examine the case of parasitic Opisthorchis felineus infection in Western Siberia and argue that understanding the local social dynamics of d…
Health, Technologies, and Politics in Post-Soviet Settings
Experiencing Syndemic
Tuberculosis (TB) remains a major global public health problem that has become a crisis fuelled by HIV and the increasing occurrence of antimicrobial resistance. What has been termed the biosocial nature of TB challenges effective control of the disease. Yet, biosocial interactions involved in the persistence of TB in diverse settings are difficult to systematically account for. The recently developed framework of syndemics provides a way to capt…
The Pragmatic Turn in Clinical Research
How does knowledge obtained in clinical trials apply to the actual treatment of patients? This question has recently acquired a new significance amidst complaints about the limited ability of trial results to improve clinical practice. Pragmatic clinical trials have been advocated to address this problem. In this article, I trace the emergence of the pragmatic turn in clinical research, starting from the first mention of ‘pragmatic trial’ in 1967…
Patient engagement in drug development
This paper focuses on the recent interest in patient engagement (PE) in drug development, expressed in the growing number of calls for engagement, novel organizations dedicated to changing the culture of drug development, and guidelines for directing and evaluating PE. By reviewing materials produced by actors in the field and analyzing publications reporting on PE initiatives, I map sites of action where PE is being conceived and practiced, deli…
Speaking of Epistemic Injustice
In this article, we reply to ‘Ethics and Epistemic Injustice in the Global South’ (Kaur et al. 2023), a response to the original article ‘Covert Qualitative Research as a Method to Study Human Rights Under Authoritarian Regimes’ (Hopman 2022). Our reply is written by authors who have expertise and direct experience with the issues at stake (authoritarianism, Global North/Global South relations, covert research methods, epistemic injustice). We sh…
Reflections on fluidity and stability
Purpose The distinction between formality and informality has been a topic central for many scholarly fields. Without rejecting the usefulness of this distinction, the authors argued that instead of analyzing an empirical situation in terms of what is formal and what is informal, it could sometimes be fruitful to focus on what is stable and what is fluid. Design/methodology/approach This paper reports the results of review and analysis of seconda…
Patients' work and fluid trajectories
Health policy studies usually conceptualise access to medicines as a result of the institutional configuration of policies, legislation, and pharmaceutical markets. This study adopts a different approach that stems from the sociology of health and Science and Technology Studies (STS). Based on an ethnographically inspired qualitative research of access practices of patients with oncological and rare diseases in Russia, we argue that access to med…
To dwell or drown? Private clinics in the swampy infrastructure of cancer care in Russia
Standardising Patient Engagement in Drug Development
Initiatives to increase patient engagement in drug development have recently been accompanied by growing calls for standardisation due to considerable uncertainties about how to best perform patient engagement and use it in drug marketing applications. We focus on materials developed by the Patient Focused Medicines Development (PFMD), a multi-stakeholder group founded in 2015, to investigate what these materials seek to standardize on patient en…
Ecologising Invited and Uninvited Patient Participation in Russia
INTRODUCTION: Public participation can be both supported and limited by decision-makers. Therefore, citizens either participate in top-down approved formats or have to turn towards subversion. These different participation practices, called invited and uninvited, are often treated by researchers as mutually exclusive. In this article, we present the case of patient organisations' involvement in various state-controlled deliberation bodies in Russ…
Knowledge‐based representation
INTRODUCTION: Recently, different actors have intensified their efforts to make drug development more participatory. They have produced many frameworks, tools and dedicated fora, where patients are portrayed as relevant stakeholders to be involved throughout the entire drug development trajectory. To better understand what such participatory efforts entail, in this article, we investigate how patient representation is configured in drug developme…
Formatting patient knowledge and channelling participation
Patient experiential knowledge is important for the quality and responsiveness of healthcare systems. However, it is not rare for patients to struggle to have their knowledge recognised as credible and valuable. This study explores how patient organisations work to adjust patient knowledge to formats recognisable and acceptable by healthcare governance decision-makers. Using the case of patient organisations in Russia, we show that such formattin…
We Know Best Because Our Skin Is in the Game”
In recent years, critical social science scholarship has expanded our understanding of public participation beyond talk‐based and institutionally organised formats, such as citizen juries and focus groups. Building on these insights and relying on digital ethnography, we studied the practices of an online community of transgender activists producing their own hormones to broaden access to hormone replacement therapy (HRT). We argue that they purs…
Patient engagement in drug development
For many years, the field of drug development remained insulated from patient engagement initiatives that became commonplace in healthcare, it is currently experiencing a participatory turn. This has been informed by a re-evaluation of the patients' insights and of the roles they can play in drug development, with both democratising and technocratic arguments invoked in support of their more substantial engagement. This article problematises the …
Medical professionals' agency and pharmaceuticalization
In the contemporary world pharmaceuticals have become a go-to answer to a growing number of questions. This process of pharmaceuticalization gives rise to a concern with the increasing influence of the pharmaceutical industry on physicians' decision-making. Critics suggest that companies' for-profit-interests might compromise the integrity of medical practice. This article employs qualitative research methodology to explore how Russian physicians…
Ambivalence and Agonism of Public Participation in Contemporary Societies
In this editorial we introduce the thematic issue “Public Participation Amidst Hostility: When the Uninvited Shape Matters of Collective Concern.” The aim of this issue is twofold. First, it takes stock of various ways in which public participation can be hindered, directly and indirectly. Second, it investigates different kinds of participatory practices that emerge in situations of hostility towards public participation. Given that participatio…
Truck drivers and intermediaries of migration between Central Asia and the EU
Migration from Central Asia to European Union (EU) countries has increased rapidly over the past years. Intermediaries play an important role in this migration. This paper focuses on migrant truck drivers from Uzbekistan and Kyrgyzstan in the EU and their experiences with intermediaries, which may be acquaintances willing to help in the search for occupation abroad, organized informal brokers, or licensed agencies. Thematic analysis of 20 intervi…
Participation in Times of War
Do digital media support or undermine democracy and freedom? Building on recent scholarship that highlights the diversity of digital media’s effects, this article begins with the premise that digital media do not clearly shape political life in contemporary societies one way or another but are instead ambivalent. The article seeks to explicate how exactly the ambivalence of digital media emerges and to arrive at a suitable conceptualisation of th…
Pioneering new migration routes
A new stream of migration from Central Asia to countries of the European Union is being spearheaded by workers employed in the truck driving industry. This is part of a trend of increasing diversification of the destinations of migration from Central Asia. This paper examines how drivers exert their agency when choosing between migration destinations. To do so, we interviewed twenty Kyrgyz and Uzbek drivers about the differences they perceived be…
Political science (22 obras) · Sociology (18 obras) · Medicine (14 obras) · Law (11 obras) · Public relations (11 obras) · Social science (10 obras) · Psychology (9 obras) · Ethics in Clinical Research (8 obras) · Business (7 obras) · Computer Science (7 obras)