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Perceptions of ageing and future aspirations by people with intellectual disability

A grounded theory study using photo-elicitation

Dados Bibliográficos

ID11201883
AutoresHenrietta Trip (0000-0001-5844-3400, University of Otago, autor correspondente), Lisa Whitehead (0000-0002-6395-0279, Edith Cowan University), Marie Crowe (0000-0002-7220-8658, University of Otago)
Ano2020
Volume40
Fascículo5
Páginas966-983
Data de publicação2020-05-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoAgeing and Society (JOURNAL)
Identificadores do periódicoISSN: 0144-686X • E-ISSN: 1469-1779
EditoraCambridge University Press (CUP) (PUBLISHER)
DOI10.1017/s0144686x18001460
OpenAlexW2901774531
IdiomaEN
Citações recebidas1
Referências citadas56

Internationally, 1 per cent of the general population are living with an intellectual disability and life expectancy is increasing in line with global trends. The majority of people with an intellectual disability live with family. This represents a growing and largely ‘hidden’ population who have, or will have, additional needs as they and their family age. There is limited research about what is important for people with intellectual disability when thinking about getting older. This article reports on a study which explored the concept of ageing and future aspirations with 19 people living with an intellectual disability, aged 37–58 years of age (mean 48 years) and living with someone they identify as family. Using Charmaz's constructivist grounded theory approach and photo-elicitation, constant comparative analysis generated four themes: reciprocating relationships, emerging (in)dependence, configuring ageing and entertaining possibilities. As part of the interview process, photo-elicitation facilitated the expression of associations and perspectives about ageing and conceptualising the future for participants. The findings demonstrate the engagement of people with intellectual disabilities in research and provided unique insights into both their experiences and perspectives on ageing in the context of family. The need for greater flexibility in service planning and delivery are identified, alongside ensuring the meaningful inclusion of people with intellectual disability in decision-making about their own lives as they age

Context (archaeology) · Grounded theory · Inclusion (mineral) · Intellectual disability · Life expectancy · Medical model of disability · Perception · Photo elicitation · Population · Psychiatry · Qualitative research · Social science · Sociology · Disability Rights and Representation · Down syndrome and intellectual disability research · Family and Disability Support Research · Medicine · Psychology · Social Psychology · Gerontology

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Obras citantes distintas1
Citações por ano0,33
Intervalo de citações2023 - 2023 (1)
Velocidade de citaçãohistorical
Altamente citadoNão
Tipos de citaçãoNeutras: 1
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