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Delivering decision making support to people with cognitive disability—What more has been learned from pilot programmes in Australia and internationally from 2016 to 2021

Dados Bibliográficos

ID11229037
AutoresShih-Ning Then (0000-0002-8211-1868, Australian Centre for Health Law Research, School of Law Queensland University of Technology Brisbane City Queensland Australia, autor correspondente), Julia Duffy (0000-0002-0737-4908, Australian Centre for Health Law Research, School of Law Queensland University of Technology Brisbane City Queensland Australia), Christine Bigby (0000-0001-7001-8976, Living With Disability Research Centre La Trobe University Melbourne Victoria Australia), Christine Sinclair (0000-0003-2734-2951, UNSW Sydney), Craig Sinclair (0000-0002-6467-1191, School of Psychology University of New South Wales Sydney New South Wales Australia), Ilan Wiesel (0000-0002-7244-1775, School of Geography, Earth and Atmospheric Sciences, Science Faculty University of Melbourne Parkville Victoria Australia), Terry Carney (0000-0002-3612-5986, University of Sydney Law School Camperdown New South Wales Australia), Jacinta Douglas (0000-0003-0940-6624, Living With Disability Research Centre La Trobe University Melbourne Victoria Australia)
Ano2024
Volume59
Fascículo2
Páginas532-553
Data de publicação2024-06-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoAustralian Journal of Social Issues (JOURNAL)
Identificadores do periódicoISSN: 0157-6321 • E-ISSN: 1839-4655
EditoraWiley (PUBLISHER • GB)
DOI10.1002/ajs4.295
OpenAlexW4387974336
IdiomaEN
Citações recebidas1
Referências citadas13

Article 12 of the United Nations Convention on the Rights of Persons with Disabilities has been instrumental in driving the development of the concept and practice of supported decision making. An important feature has been the development of “supported decision making pilots.” This paper identifies, describes and analyses pilot programmes providing support for decision making for people with cognitive disabilities in Australia and internationally between 2016 and 2021. It finds that challenges included providing support for socially isolated people and adequately resourcing those programmes. However, most pilots reported positive outcomes for decision makers, adding to the evidence base for claims to be made about the positive impact of supported decision making on the lives of people with disabilities. The pilots demonstrate that, internationally, there is an emerging set of programmes that seek to promote supported decision making incrementally through developing focussed community awareness and practice. While still small‐scale, time‐limited and experimental, with different levels of rigour in practice and evaluation, they provide some foundation and a preliminary evidence base for larger interventions and reforms in the future

Cognition · Convention · Convention on the Rights of Persons with Disabilities · Medical education · Political science · Project commissioning · Psychological intervention · Public relations · Publishing · Rigour · Scale (ratio · Applied Psychology · Geriatric Care and Nursing Homes · Healthcare Decision-Making and Restraints · Healthcare innovation and challenges · Law · Medicine · Psychology

  • Supported Decision‐Making Rights in Behaviour Support Policies

    Open Access•Sally Robinson, Karen R Fisher et al.•Australian Journal of Social Issues•2025

  • Realising ‘will, preferences and rights’

    Open Access•Terry Carney, Shih-Ning Then et al.•Griffith Law Review•2019

  • Paternalism to empowerment

    Open Access•Terry Carney, Christine Bigby et al.•Disability & Society•2021

  • Delivering decision making support to people with cognitive disability — What has been learned from pilot programs in Australia from 2010 to 2015

    Open Access•Christine Bigby, Jacinta Douglas et al.•Australian Journal of Social Issues•2017

  • The temporalities of supported decision-making by people with cognitive disability

    Open Access•Ilan Wiesel, Elizabeth Smith et al.•Social & Cultural Geography•2022

Obras citantes distintas1
Citações por ano1
Intervalo de citações2025 - 2025 (1)
Velocidade de citaçãorecent
Altamente citadoNão
Tipos de citaçãoNeutras: 1
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