Caregiver or care receiver

Adolescents' experience of caregiving to a parent with severe mental illness: A qualitative study

Dados Bibliográficos

ID12570525
AutoresFarnaz Rahmani (0000-0002-1126-8593, School of Nursing and Midwifery Tabriz University of Medical Sciences Tabriz Iran, autor correspondente), Fariborz Roshanghar (School of Nursing and Midwifery Tabriz University of Medical Sciences Tabriz Iran), Leila Gholizadeh (0000-0002-6711-3312, Faculty of Health University of Technology Sydney New South Wales Australia), Geoffrey L Dickens (0000-0002-8862-1527, Centre for Applied Nursing Research, Western Sydney University and South Western Sydney Local Health District Ingham Institute for Medical Research Sydney New South Wales Australia)
Ano2022
Volume27
Fascículo4
Páginas795-804
Data de publicação2022-04-28
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoChild & Family Social Work (JOURNAL)
Identificadores do periódicoISSN: 1356-7500 • E-ISSN: 1365-2206
EditoraWiley (PUBLISHER • GB)
DOI10.1111/cfs.12926
OpenAlexW4293241349
IdiomaEN
Citações recebidas2
Referências citadas42

Exploring the experiences of adolescent caregivers of mentally ill parents is essential to understand their challenges and identify their care needs. Using a qualitative research design, 18 caregiving adolescents shared their experiences of living with and providing care to a parent with a severe mental illness. The analysis of the interviews resulted in the emergence of three main categories: (1) emotional exhaustion with associated subthemes of ‘ongoing worries’, ‘fear of loneliness’, ‘feeling of shame and guilt’ and ‘fear of discrimination and stigma’; (2) being trapped in a difficult situation with subthemes of ‘living a compromised life’, ‘alienating from peers’ and ‘caregiver rather than care receiver; and (3) adapting to the situation with subthemes of developing new skills and growing accountability. The study findings suggest that adolescent caregivers of parents with severe mental illness experience significant challenges and psychological distress associated with their caregiving role. They need to be supported by health care providers to develop strategies to adjust to their situation and maintain health and well‐being

Distress · Feeling · Loneliness · Mental health · Mental illness · Psychiatry · Qualitative research · Shame · Clinical Psychology · Family Caregiving in Mental Illness · Family Support in Illness · Maternal Mental Health During Pregnancy and Postpartum · Psychology · Social Psychology