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Adolescents’ and Parents’ Attitudes Toward Adolescent Clinical Trial Participation

Changes Over One Year

Dados Bibliográficos

ID12807136
AutoresRebecca K Tsevat (0000-0002-3097-8988, Columbia University), Carmen Radecki Breitkopf (0000-0002-5746-8355, Mayo Clinic in Arizona), Sara E Landers (0000-0002-2418-1366, Columbia University), Ariel M de Roche (Columbia University), Christine Mauro (0000-0001-6065-8128, Columbia University), Lisa Ipp (New York Hospital Queens), M Catallozzi (0000-0003-3935-9953, New York Hospital Queens), Susan L Rosenthal (0000-0002-8119-725X, Columbia University, autor correspondente)
Ano2018
Volume13
Fascículo4
Páginas383-390
Data de publicação2018-08-13
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoJournal of Empirical Research on Human Research Ethics (JOURNAL)
Identificadores do periódicoISSN: 1556-2646 • E-ISSN: 1556-2654
EditoraSAGE Publishing (PUBLISHER • US)
DOI10.1177/1556264618790889
PMID30103655
OpenAlexW2887279023
IdiomaEN
Citações recebidas1
Referências citadas24

Little is known about how adolescents' and parents' thoughts about participation in clinical trials change over time. In this study, adolescent (14-17 years)-parent dyads were asked about willingness to participate in a hypothetical reproductive health study. A year later, they were asked how their thoughts about the study had changed. Qualitative responses were coded and analyzed using framework analysis. Thirty-two percent of adolescents and 18% of parents reported changes in thoughts; reasons included general changes in perception, clearer understanding, new knowledge or experiences, increased maturity/age of adolescents, and changes in participants independent of the study. Adolescents and parents may benefit from learning about studies multiple times, and investigators should account for development and new experiences to optimize adolescent research enrollment

Adolescent development · Adolescent health · Clinical trial · Developmental psychology · Maturity (psychological · Perception · Qualitative research · Adolescent and Pediatric Healthcare · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Ethics in Clinical Research · Medicine · Psychology

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Obras citantes distintas1
Citações por ano0,17
Intervalo de citações2020 - 2020 (1)
Velocidade de citaçãohistorical
Altamente citadoNão
Tipos de citaçãoNeutras: 1
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