Unmasked to a Positive Triumph”

“Unmasked to a Positive Triumph”:Women With HIV Share the Benefits of Showing Their Faces Through Photovoice Toshua Kennedy, PhD, Michelle Teti, DrPH, Deanna Hayes, Latrice C. Pichon, PhD, and Rose Farnan, BSN What Is the Purpose of This Study/Review? • To find out why women with human immunodeficiency virus (HIV) included selfies among the pictures taken to show what their lives were like. What Is the Problem? • Low-income women with HIV continue to have poor health outcomes and a low quality of life. • Plans and strategies to improve their health must include their thoughts and experiences to be applicable and appropriate for them. • Research about a community of people that includes the same community as stakeholders is encouraged because doing so creates a sense of mutual ownership and buy-in from all parties. • Few participatory research studies exists among women with HIV, but even fewer studies analyze how taking part in such studies affect them as participants. • Using Photovoice, the women with HIV took pictures to describe their lives. • Many women chose to include their faces in the pictures and the researchers sought to determine why they made this choice. What Are the Findings? • Partnerships formed among women with HIV, community agencies, and researchers. • The participatory approach created an atmosphere of safety and allowed the women with HIV to be open with themselves and others. • Of 33 women with HIV, 14 included their faces in the pictures. • Reasons for including selfies were to (1) reveal the “real” face of HIV/AIDS, (2) share self-portraits as an act of resistance, and (3) help other women living with HIV. Who Should Care Most? • Researchers who use participatory methods and Photovoice among women with HIV. • Women with HIV. • Health care providers. • HIV care organizations. [End Page 491] Recommendations for Action • Continue to include women with HIV in participatory studies that use Photovoice because of the freedom expressed by these participants. • Institutional review boards should be flexible when seeking to conceal the identity of individuals with HIV who may desire to reveal themselves to others. • Continue to seek more information on how participants experience and benefit from this collaborative process. [End Page 492] Toshua Kennedy University of South Carolina Upstate: Mary Black School of Nursing Michelle Teti University of Missouri Deanna Hayes Truman Medical Center Latrice C. Pichon University of South Carolina Upstate: Mary Black School of Nursing Rose Farnan Truman Medical Center Copyright © 2016 Johns Hopkins University Press

Affect (linguistics · Citizen journalism · Community-based participatory research · Economic growth · Family medicine · Human immunodeficiency virus (HIV · Participatory action research · Photovoice · Political science · Sociology · Women of color · Gender Studies · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology · Qualitative Research Methods and Ethics · Social Psychology · Gerontology

• After 10 Years

  Suzanne M Grieb, Lindsey Sizemore et al.•Progress in community health…•2017

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