Is consent for research genuinely informed? Using decision aid tools to obtain informed consent in the global south

Dados Bibliográficos

ID12893142
AutoresMarylène Dugas (Université de Montréal, autor correspondente), Janice Graham (0000-0002-6326-8122, Dalhousie University)
Ano2011
Volume7
Fascículo3
Páginas349-359
Data de publicação2011-12-01
Peer ReviewedSim
Open AccessNão
TipoARTICLE
PeriódicoJournal of Global Ethics (JOURNAL)
Identificadores do periódicoISSN: 1744-9626 • E-ISSN: 1744-9634
EditoraRoutledge (PUBLISHER • GB)
DOI10.1080/17449626.2011.591817
OpenAlexW2048823562
IdiomaEN
Citações recebidas6
Referências citadas15

Gaining informed consent among marginalized groups that include decisionally incapacitated individuals and those outside of the researcher's own geo-social and ethnic background still challenges many researchers. We suggest that there is a need for consideration of a different approach to research ethics in international settings. Based on extensive field work in West Africa on medical knowledge transfers and patient–healer relationships, this paper will discuss the challenges posed in obtaining informed individual consent in international settings. It is argued that while being on the whole convincing, the top-down approach of the proposed solutions, which clearly dominates the participative approach, fails in building sustainable capacity, decision-making competency, and empowerment in the communities in which the research is conducted. Using appropriate decision aids can help resolve these issues

Alternative medicine · Engineering ethics · Informed consent · Political science · Sociology · Engineering · Ethics in Clinical Research · Health Systems, Economic Evaluations, Quality of Life · Medicine · Patient-Provider Communication in Healthcare · Psychology