Ethical Considerations When Conducting Pan-European Research with and for Adolescent Young Carers

Dados Bibliográficos

ID12901967
AutoresElizabeth Hanson (0000-0001-7609-4822, Linnaeus University, autor correspondente), Feylyn Lewis (0000-0003-2306-8182, Vanderbilt University), Francesco Barbabella (0000-0002-1497-0011, Linnaeus University), Renske Hoefman (0000-0003-4533-2562, Netherlands Institute for Social Research), Giulia Casu (0000-0001-5441-3044, University of Bologna), Licia Boccaletti (0000-0003-0332-1945), Agnes Leu (0000-0002-5451-837X, University of Basel), Hlebec (0000-0002-3691-7959, University of Ljubljana), Irena Bolko (0000-0003-0847-0560, University of Ljubljana), Sara Santini (0000-0003-4705-4631, Research Institute on Sustainable Economic Growth), Miriam Svensson (0000-0002-8899-2539, Linnaeus University), Saul Becker (0000-0002-7643-5903, Manchester Metropolitan University), Lennart Magnusson (0009-0000-8265-0944, Linnaeus University)
Ano2023
Volume17
Fascículo2
Páginas125-158
Data de publicação2023-04-03
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoEthics and Social Welfare (JOURNAL)
Identificadores do periódicoISSN: 1749-6535 • E-ISSN: 1749-6543
EditoraTaylor & Francis (PUBLISHER • GB)
DOI10.1080/17496535.2023.2205654
OpenAlexW4375863494
IdiomaEN
Citações recebidas1
Referências citadas32

Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’ project, which forms the focus of this paper, aimed to change the ‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects

Business · Engineering ethics · Focus group · Participatory action research · Political science · Public relations · Service (business · Service provider · Sociology · Status quo · Work (physics · Engineering · Family Support in Illness · Intergenerational Family Dynamics and Caregiving · Law · Psychology · Youth Education and Societal Dynamics