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Ethical Issues in Participatory Action Research on Covid-appropriate Behaviour and Vaccine Hesitancy in India

A Case with Commentaries

Dados Bibliográficos

ID12902001
AutoresPradeep Narayanan (Praxis Institute for Participatory Practices), Michelle R Brear (0000-0002-5990-5061, University of the Witwatersrand), Pinky N Shabangu (0000-0002-5175-6348, Southern Africa Nazarene University), Barbara Groot (0000-0001-7495-3048, Leiden University Medical Center), Charlotte van den Eijnde (0000-0003-3170-1822, Leiden University Medical Center), Bank (0000-0002-2529-6413, Durham University, autor correspondente)
Ano2023
Volume17
Fascículo2
Páginas221-228
Data de publicação2023-04-03
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoEthics and Social Welfare (JOURNAL)
Identificadores do periódicoISSN: 1749-6535 • E-ISSN: 1749-6543
EditoraTaylor & Francis (PUBLISHER • GB)
DOI10.1080/17496535.2023.2209363
OpenAlexW4377041353
IdiomaEN
Citações recebidas1
Referências citadas3

This article starts with a case outlining ethical challenges encountered in participatory action research (PAR) on vaccine hesitancy in rural India during Covid-19. Community researchers were recruited by a not-for-profit organisation, with the aim of both discovering the reasons for vaccine hesitancy and encouraging take-up. This raised issues about the roles and responsibilities of local researchers in their own communities, where they might be blamed for adverse reactions to vaccination. They and their mentor struggled with balancing societal protection against individual rights to make choices. These themes are explored in two commentaries discussing the difficulties in balancing ethics in public health (prioritising societal benefits), social research (protecting participants from harm and respecting their rights not to be involved) and participatory research practices (maximising democratic participation and decision-making). As discussed in the first commentary, often these cohere, but tensions can arise. The second commentary also raises the issue of epistemic justice, questioning the extent to which the villagers could have a say in the design, implementation and interpretation of the research, and the dangers of not hearing the voices and arguments of people who reject vaccination. The case and commentaries highlight the complexities of PAR and additional challenges in a public health context

Context (archaeology · Economic Justice · Environmental ethics · Harm · Interpretation (philosophy · Participatory action research · Political science · Public relations · Sociology · Law · Qualitative Research Methods and Ethics · Vaccine Coverage and Hesitancy · Viral Infections and Outbreaks Research

  • Under the Microscope

    Open Access•Marilena Von Köppen, Bank et al.•Ethics and Social Welfare•2025

  • Epistemic Injustice

    Miranda Fricker•Epistemic Injustice•2007

  • Informed Consent

    Klaus Hoeyer, Linda F Hogle•Annual Review of Anthropology•2014

Obras citantes distintas1
Citações por ano1
Intervalo de citações2025 - 2025 (1)
Velocidade de citaçãorecent
Altamente citadoNão
Tipos de citaçãoNeutras: 1
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