Turning to Peers

Integrating Understanding of the Self, the Condition, and Others’ Experiences in Making Sense of Complex Chronic Conditions

Dados Bibliográficos

ID14871191
AutoresAisling Ann O’Kane (0000-0001-8219-8126, University College London, autor correspondente), Sun Young Park (0000-0003-4246-7437, University of Michigan), Helena M Mentis (0000-0002-0142-3529, University of Maryland, Baltimore County), Helena Mentis, Ann Blandford (0000-0002-3198-7122, University College London), Yunan Chen (0000-0002-0070-4484, University of California, Irvine)
Ano2016
Volume25
Fascículo6
Páginas477-501
Data de publicação2016-12-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoComputer Supported Cooperative Work (CSCW (JOURNAL)
Identificadores do periódicoISSN: 0925-9724 • E-ISSN: 1573-7551
EditoraSpringer Science and Business Media LLC (PUBLISHER)
DOI10.1007/s10606-016-9260-y
PMID32355411
OpenAlexW2515282779
IdiomaEN
Citações recebidas4
Referências citadas60

People are increasingly involved in the self-management of their own health, including chronic conditions. With technology advances, the choice of self-management practices, tools, and technologies has never been greater. The studies reported here investigated the information seeking practices of two different chronic health populations in their quest to manage their health conditions. Migraine and diabetes patients and clinicians in the UK and the US were interviewed about their information needs and practices, and representative online communities were explored to inform a qualitative study. We found that people with either chronic condition require personally relevant information and use a broad and varied set of practices and tools to make sense of their specific symptoms, triggers, and treatments. Participants sought out different types of information from varied sources about themselves, their medical condition, and their peers' experiences of the same chronic condition. People with diabetes and migraine expended great effort to validate their personal experiences of their condition and determine whether these experiences were 'normal'. Based on these findings, we discuss the need for future personal health technologies that support people in engaging in meaningful and personalised data collection, information seeking, and information sharing with peers in flexible ways that enable them to better understand their own condition

Chronic condition · Disease · Internet privacy · Qualitative research · Self-management · Set (abstract data type · Sociology · Computer Science · Diabetes Management and Education · Health Literacy and Information Accessibility · Medicine · Mental Health and Patient Involvement · Psychology