Health literacy on quality of life for children with cancer

Modules on pediatric palliative care

Dados Bibliográficos

ID14967743
AutoresXimena Garcia-Quintero (0000-0003-1416-544X, Department of Global Pediatric Medicine, St. Jude Children’s Research Hospital, Memphis, United States of America., autor correspondente), Daniel Bastardo Blanco (0000-0001-8232-7522, Department of Strategic Communication, Education and Outreach. St. Jude Children’s Research Hospital, Memphis, United States of America.), Liliana Vasquez (0000-0002-9584-3208, Noncommunicable Diseases Unit, Pan American Health Organization/World Health Organization, Washington, DC, United States.), Soad Fuentes-Alabí (Noncommunicable Diseases Unit, Pan American Health Organization/World Health Organization, Washington, DC, United States.), Soad Fuentes‐Alabi (0000-0003-4245-3537), Sara Benites-Majano (Noncommunicable Diseases Unit, Pan American Health Organization/World Health Organization, Washington, DC, United States.), Maurício Maza (0000-0003-2027-4431, Noncommunicable Diseases Unit, Pan American Health Organization/World Health Organization, Washington, DC, United States.), Cecilia Ugaz (0000-0002-9403-7415, Department of Oncology, Instituto Nacional de Enfermedades Neoplásicas, Lima, Peru.), Roxana Morales (Department of Oncology, Instituto Nacional de Enfermedades Neoplásicas, Lima, Peru.), Justin N Baker (0000-0002-6584-6483, Department of Global Pediatric Medicine, St. Jude Children’s Research Hospital, Memphis, United States of America.), Michael J McNeil (0000-0001-8817-1995, Department of Global Pediatric Medicine, St. Jude Children’s Research Hospital, Memphis, United States of America.)
Ano2023
Volume47
Páginas1
Data de publicação2023-09-25
Open AccessSim
TipoARTICLE
PeriódicoRevista Panamericana de Salud Pública (JOURNAL)
Identificadores do periódicoISSN: 1020-4989 • E-ISSN: 1680-5348
EditoraPan American Health Organization (PUBLISHER • US)
DOI10.26633/rpsp.2023.134
PMID37750058
OpenAlexW4386955090
IdiomaEN
Referências citadas7

Objective. To describe the development of educational materials for parents and other caregivers of children with cancer, which utilized a culturally sensitive approach to reduce acceptance barriers to palliative care (PC). Methods. The Pan American Health Organization (PAHO), St. Jude Children’s Research Hospital, and partners in Latin America and the Caribbean collaborated in a three-phase project, beginning with a needs assessment survey of caregivers of children with cancer in Peru. Based on this finding, an interdisciplinary team of pediatric PC experts developed educational content that was designed and validated by an international committee of PC and communication experts. Results. The collaboration resulted in the development of an eight-module series that introduces caregivers to key concepts of pediatric PC, including management of pain, quality of life, and end of life care. The series was designed to reduce caregiver stigma associated with PC through culturally sensitive education that addresses the low levels of health literacy among caregivers in Latin America and the Caribbean. In the 15 months since the launch, these modules have been distributed throughout Latin America and were downloaded 2 825 times. Conclusions. Educational materials and anticipatory guidance of PC were considered to be a priority for parents and other caregivers of children with cancer throughout Latin America. The materials developed through this project have been widely utilized and are available through the PAHO website and the Together by St. JudeTM online resource

Cancer · Family medicine · Latin Americans · Literacy · Medical education · Palliative care · Pedagogy · Pediatric cancer · Political science · Psychiatry · Quality of life (healthcare · Stigma (botany · Childhood Cancer Survivors' Quality of Life · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology

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