The use of routinely collected patient data for research

A critical review

Dados Bibliográficos

ID15085779
AutoresVictoria Foster (0000-0001-8869-9511, University of Manchester), A Young (0000-0001-8551-5078, University of Manchester)
Ano2012
Volume16
Fascículo4
Páginas448-463
Data de publicação2012-07-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoHealth An Interdisciplinary Journal for the Social Study of Health Illness and Medicine (JOURNAL)
Identificadores do periódicoISSN: 1363-4593 • E-ISSN: 1461-7196
EditoraSAGE Publications (PUBLISHER • US)
DOI10.1177/1363459311425513
PMID22071234
OpenAlexW2050162204
IdiomaEN
Citações recebidas4
Referências citadas33

Over recent years in the UK there has been growing interest in the potential for routinely collected NHS (National Health Service) patient data to be used for secondary purposes, facilitated by the potential of increasingly sophisticated electronic databases. This article is based on a critically reflective literature review which analyses the key debates pertaining to this issue. The work arose in the context of a programme of research concerning routine patient data use in neonatal care. The article includes analysis of commentary (opinion and ethical inquiry) as well as empirically derived claims. It aims to deconstruct the knowledge assumptions on which relevant research studies have been based or are proposed and it also incorporates ontological position and moral argument. Results are presented according to three predominant debates: the prevailing claim that all health research benefits civic society; the varieties of informed consent and choices open to patients regarding secondary uses of their data; and the ‘rights and responsibilities’ of patients when it comes to their data being used for research purposes. It examines the relevance of these themes specifically to the neonatal context and the implications for our own research, concluding that employing an alternative ethical model to the traditional professional one might be useful in order to provide a further perspective on the issue

Engineering ethics · Health care · Political science · Public relations · Sociology · Computer Science · Engineering · Ethics in Clinical Research · Law · Medicine · Mental Health and Patient Involvement · Palliative Care and End-of-Life Issues · Psychology