Quality of life of patients with Fabry disease

Disease · Enzyme replacement therapy · Fabry disease · Physical therapy · Population · Quality of life (healthcare · Glycogen Storage Diseases and Myoclonus · Lysosomal Storage Disorders Research · Medicine · Parkinson's Disease Mechanisms and Treatments · Internal Medicine

• FABry Disease Patient-Reported Outcome-GastroIntestinal (FABPRO-GI)

  Open Access•Alan L Shields, Roger E Lamoureux et al.•Quality of Life Research•2021

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• Functional Status and Well-being of Patients With Chronic Conditions

  Anita L Stewart•JAMA•1989

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• Assessment of Quality-of-Life Outcomes

  Marcia A Testa, Donald C Simonson•New England Journal of Medicine•1996

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• The MOS 36-ltem Short-Form Health Survey (SF-36)

  John E Ware, Cathy Donald Sherbourne•Medical Care•1992

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• The SF-36 as a health status measure for epilepsy

  Open Access•Ann Jacoby, Gerard A Baker et al.•Quality of Life Research•1999

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• Quality of life of stroke survivors

  Open Access•Peter Kim, Sharon Warren et al.•Quality of Life Research•1999

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• Health-related quality of life among people with HIV disease

  Open Access•Eric G Bing, Ron D Hays et al.•Quality of Life Research•2000

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• Quality of life assessment in adults with type 1 Gaucher disease

  Open Access•Bruce J Masek, Katherine B Sims et al.•Quality of Life Research•1999

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• He impact of Gaucher disease and its treatment on quality of life

  Open Access•Rashelle Hayes, R P Hayes et al.•Quality of Life Research•1998

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• The health-related quality of life of adults with Gaucher's disease receiving enzyme replacement therapy

  Open Access•A M Damiano, Gregory M Pastores et al.•Quality of Life Research•1998

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• Relationship Between CD4 Count, Viral Burden, and Quality of Life Over Time in HIV-1-Infected Patients

  Kevin P Weinfurt, Richard J Willke et al.•Medical Care•2000

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