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Reflections, impact and recommendations of a co‐produced qualitative study with young people who have experience of mental health difficulties

Dados Bibliográficos

ID19506828
AutoresLindsay H Dewa (0000-0001-8359-8834, NIHR Patient Safety Translational Research Centre Imperial College London London UK, autor correspondente), Anna Lawrence‐Jones (0000-0002-7975-1346, NIHR Patient Safety Translational Research Centre Imperial College London London UK), Caroline Crandell (0000-0001-6619-8900, The McPin Foundation London UK), Jack Jaques (The McPin Foundation London UK), Katy Pickles (The McPin Foundation London UK), Mary Lavelle (0000-0002-3951-0011, City, University of London London UK), Sofia Pappa (0000-0002-6303-1547, West London NHS Trust London UK), Paul Aylin (0000-0003-4589-1743, NIHR Patient Safety Translational Research Centre Imperial College London London UK)
Ano2021
Volume24
FascículoS1
Páginas134-146
Data de publicação2021-05-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoHealth Expectations (JOURNAL)
Identificadores do periódicoISSN: 1369-6513 • E-ISSN: 1369-7625
EditoraWiley (PUBLISHER • GB)
DOI10.1111/hex.13088
PMID32515538
OpenAlexW3033390860
IdiomaEN
Citações recebidas25
Referências citadas12

BACKGROUND: There is limited evidence of genuine equal partnership where power is shared with young people with mental health difficulties throughout all research stages, particularly in data collection and analysis. OBJECTIVE: To describe how our qualitative study, exploring young peoples' perceptions on the feasibility of using technology to detect mental health deterioration, was co-produced using principles of co-production, whilst reflecting on impact, challenges and recommendations. METHODS: Young people with experience of mental health difficulties were appointed and then worked with researchers throughout all research stages. The study was evaluated against the five principles of co-production. Reflections from researchers and young people were collected throughout. RESULTS: Seven young people formed an initial Young People's Advisory Group (YPAG); three became co-researchers. Reflection was key throughout the process. Sharing power became easier and more evident as trust, confidence and mutual respect grew over time, particularly after a safe space was established. The safe space was crucial for open discussions, and our WhatsApp group enabled continual communication, support and shared decision-making. The resulting co-produced topic guide, coding framework, thematic map, papers and presentations demonstrated significant impact. CONCLUSIONS: To our knowledge, this is the first qualitative mental health study to be co-produced using the principles of co-production. Our rigorous assessment can be utilized as an informative document to help others to produce meaningful co-produced future research. Although co-production takes time, it makes significant impact to the research, researchers and co-researchers. Flexible funding for spontaneous suggestions from co-researchers and more time for interview training is recommended

General partnership · Medical education · Mental health · Perception · Political science · Psychiatry · Qualitative research · Social science · Sociology · Thematic analysis · Applied Psychology · Computer Science · Focus Groups and Qualitative Methods · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology

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Obras citantes distintas25
Citações por ano4,17
Intervalo de citações2020 - 2026 (7)
Velocidade de citaçãocurrent
Altamente citadoNão
Tipos de citaçãoNeutras: 23
Ethnos_APP • Projeto Open Source • Licença MIT • Frontend v2.0.0 • Privacidade e Cookies • Documentação da API: api.ethnos.app/docs • Código da API: GitHub • DOI: 10.5281/zenodo.17049435 • Código do Frontend: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae