Ameliorating epistemic injustice in practice
Communication strategies in a research project with refugee youth coresearchers
Dados Bibliográficos
INTRODUCTION: Many researchers want to include seldom involved groups, such as refugees and youth, in patient and public involvement (PPI), but experience a number of barriers. The PPI research community calls for critical evaluations that are prospective, data-based and conducted by researchers and public contributors together. In this study, we conducted a longitudinal evaluation of a core activity in all collaborations: communication strategies. The aim was to evaluate the communication strategies adopted throughout a research project with refugee youth coresearchers. METHODS: This article is based on the evaluation of a project where refugee youth were involved in the online adaptation of a group-based programme for youth with posttraumatic stress. Behavioural observations and field notes collected during the project were analysed with qualitative content analysis and a readability index, and discussed through the lens of epistemic injustice. The article was cowritten by researchers and refugee youth. FINDINGS: Four manifest categories were identified: Facilitating engagement through coplanning and circumstantial flexibility; Different needs require different channels; It's not just about the channel-facilitation skills matter; Finding a common language opens a communicative flow. In addition, a latent underlying theme reflecting the role of trust was identified: Interactive moments facilitate trust-trust facilitates richer involvement. CONCLUSION: At the core of the identified communication strategies were strengthening relationship-building and actively facilitating involvement. Establishing trusting relationships enabled refugee youth to share input. The communication strategies increased hermeneutical justice by contributing to a common understanding; thus, taking a step towards ameliorating epistemic injustice. PATIENT OR PUBLIC CONTRIBUTION: This article is a participatory analysis of a PPI process; it was written in collaboration between researchers and refugee youth coauthors, who were all previously involved in the evaluated project
Injustice · Political science · Public relations · Qualitative research · Refugee · Social science · Sociology · Mental Health and Patient Involvement · Participatory Visual Research Methods · Patient-Provider Communication in Healthcare · Psychology · Social Psychology
Epistemic Injustice
Qualitative content analysis in nursing research
‘You want to deal with power while riding on power’
Participatory Action Research
Participatory health research with migrants
Co‐producing research with youth
Patient and public engagement in research and health system decision making
Youth engagement in mental health research
‘I felt like a human being’—An exploratory, multi‐method study of refugee involvement in the development of mental health intervention research
They can't be believed
Why Action Research
Ordinary people only
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