Cultural adaptation of an intervention for caregivers of young autistic children

Caregivers of autistic children in low‐to‐middle‐income countries experience many barriers to access resources to support their child's development. Caregiver training is considered an evidence‐based practice and may be a cost‐effective way to support caregivers of autistic children in such settings. This study focuses on the cultural adaptation of Parents Taking Action (PTA; Magaña et al., Family Process , 56 , 57–74, 2017) to support caregivers of autistic children in Paraguay. We conducted focus groups and individual interviews with 28 caregivers, autistic individuals, and professionals in Paraguay to understand caregivers' needs and to explore needed cultural adaptations of PTA to achieve contextual fit. Participants identified caregivers' need for accurate and reliable information, strategies to support children's growth, and emotional support and strategies to manage stress. Additionally, participants provided recommendations for adapting PTA considering the dimensions within the Cultural Adaptation Checklist (Lee et al., International Journal of Developmental Disabilities , 2023). This study is the first step in the iterative process of culturally adapting an intervention and the process described in this study may be appropriate for culturally adapting other interventions

Adaptation (eye) · Autism · Checklist · Cultural diversity · Developmental psychology · Focus group · Intervention (counseling) · Psychiatry · Psychological intervention · Psychotherapist · Social support · Assistive Technology in Communication and Mobility · Autism Spectrum Disorder Research · Clinical Psychology · Family and Disability Support Research · Psychology

• Studying ethnic minority and economically disadvantaged populations

  George P Knight, Mark W Roosa et al.•Studying ethnic minority and…•2009

  Incluir item

• Ecological validity and cultural sensitivity for outcome research

  Open Access•Guillermo Bernal, 剛 舟木 et al.•Journal of Abnormal Child…•1995

  Incluir item

• The Cultural Adaptation of Prevention Interventions

  Open Access•F G Castro, Manuel Barrera et al.•Prevention Science•2004

  Incluir item

• Cultural adaptations and therapist multicultural competence

  Open Access•Alberto Soto, Tony Bagnall Smith et al.•Journal of Clinical Psychology•2018

  Incluir item

• Parents Taking Action

  Kimberly Lopez, Sandy Magaña et al.•Journal of Ethnic & Cultural…•2019

  Incluir item

• Cultural adaptation of treatments

  Guillermo Bernal, María I Jiménez-Chafey et al.•Professional Psychology Research…•2009

  Incluir item

• Qualitative Studies in Special Education

  Open Access•Ellen Brantlinger, Robert T Jiménez et al.•Journal of Exceptional Children•2005

  Incluir item

• The use of Latinx in public health research when referencing Hispanic or Latino populations

  Open Access•Luisa N Borrell, Sandra E Echeverria•Social Science & Medicine•2022

  Incluir item