Qualitative Study on Internet Use and Care Impact for Black Men With Prostate Cancer

Dados Bibliográficos

ID21650751
AutoresStacy Loeb (0000-0003-3933-9207, New York University Langone Health, New York, NY, USA, autor correspondente), Tatiana Sanchez Nolasco (0000-0002-8402-1508, New York University Langone Health, New York, NY, USA), Nataliya Byrne (0000-0002-6376-5444, New York University Langone Health, New York, NY, USA), Laura Allen (0000-0002-2033-7298, University of California San Francisco, San Francisco, CA, USA), Aisha T Langford (0000-0003-1758-691X, New York University Langone Health, New York, NY, USA), Joseph Ravenell (0000-0001-7024-3460, New York University Langone Health, New York, NY, USA), Scarlett Lin Gomez (0000-0002-5143-4867, University of California San Francisco, San Francisco, CA, USA), Samuel L Washington (0000-0002-2467-6115, University of California San Francisco, San Francisco, CA, USA), Hala T Borno (0000-0002-4357-9759, University of California San Francisco, San Francisco, CA, USA), Derek M Griffith (0000-0003-0018-9176, Georgetown University), Nickole Criner (University of California San Francisco, San Francisco, CA, USA)
Ano2024
Volume51
Fascículo3
Páginas359-366
Data de publicação2024-06-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoHealth Education & Behavior (JOURNAL)
Identificadores do periódicoISSN: 1090-1981 • E-ISSN: 1552-6127
EditoraSAGE Publications (PUBLISHER • US)
DOI10.1177/10901981241228226
PMID38366884
OpenAlexW4391897020
IdiomaEN
Referências citadas22

Black men have a greater risk of prostate cancer as well as worse quality of life and more decisional regret after prostate cancer treatment compared to non-Hispanic White men. Furthermore, patients with prostate cancer who primarily obtain information on the internet have significantly more decisional regret compared to other information sources. Our objective was to explore the perspectives of Black patients on the use and impact of the internet for their prostate cancer care. In 2022–2023, we conducted seven virtual focus groups with Black patients with prostate cancer ( n = 22). Transcripts were independently analyzed by two experienced researchers using a constant comparative method. Online sources were commonly used by participants throughout their cancer journey, although informational needs varied over time. Patient factors affected use (e.g., physical health and experience with the internet), and family members played an active role in online information-seeking. The internet was used before and after visits to the doctor. Key topics that participants searched for online included nutrition and lifestyle, treatment options, and prostate cancer in Black men. Men reported many downstream benefits with internet use including feeling more empowered in decision-making, reducing anxiety about treatment and providing greater accountability for research. However, they also reported negative impacts such as feeling overwhelmed or discouraged sorting through the information to identify high-quality content that is personally relevant, as well as increased anxiety or loss of sleep from overuse. In summary, online sources have the potential to positively impact the cancer journey by reinforcing or supplementing information from health care providers, but can be harmful if the information is poor quality, not representative, or the internet is overused

Cancer · Prostate cancer · Qualitative research · Sociology · The Internet · World Wide Web · Computer Science · Global Cancer Incidence and Screening · Medicine · Mobile Health and mHealth Applications · Psychology · Gerontology · Internal Medicine