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A co-design living labs philosophy of practice for end-to-end research design to translation with people with lived-experience of mental ill-health and carer/family and kinship groups

Dados Bibliográficos

ID22080989
AutoresVictoria J Palmer (0000-0002-1060-9990), Jennifer Bibb (0000-0001-6317-3409, The University of Melbourne), Matthew Lewis (0000-0003-3891-4169, The University of Melbourne), Konstancja Densley (0000-0001-6822-2011, The University of Melbourne), Roxanne Kritharidis (The University of Melbourne), Elise Dettmann (0009-0002-0775-4051, The University of Melbourne), Pam Sheehan (The University of Melbourne), Ann Daniell, Anne Daniell (The University of Melbourne), Bev Harding (The University of Melbourne), Tricia Schipp (The University of Melbourne), Nargis Dost (The University of Melbourne), Gregor McDonald (The University of Melbourne)
Ano2023
Volume11
Páginas1206620-1206620
Data de publicação2023-11-30
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoFrontiers in Public Health (JOURNAL)
Identificadores do periódicoISSN: 2296-2565 • E-ISSN: 2296-2565
EditoraFrontiers Media SA (PUBLISHER • CH)
DOI10.3389/fpubh.2023.1206620
PMID38115850
OpenAlexW4389238081
IdiomaEN
Citações recebidas5
Referências citadas27

There is increased recognition that people with lived-experience of mental ill-health ought to be centred in research design, implementation and translation, and quality improvement and program evaluation of services. There is also an increased focus on ways to ensure that co-design processes can be led by people with lived-experience of mental ill-health. Despite this, there remains limited explanation of the physical, social, human, and economic infrastructure needed to create and sustain such models in research and service settings. This is particularly pertinent for all health service sectors (across mental and physical health and social services) but more so across tertiary education settings where research generation occurs for implementation and translation activities with policy and services. The Co-Design Living Labs program was established in 2017 as an example of a community-based embedded approach to bring people living with trauma and mental ill-health and carers/family and kinship group members together with university-based researchers to drive end-to-end research design to translation in mental healthcare and research sectors. The program’s current membership is near to 2000 people. This study traces the evolution of the program in the context of the living labs tradition of open innovation. It overviews the philosophy of practice for working with people with lived-experience and carer/family and kinship group members—togetherness by design. Togetherness by design centres on an ethical relation of being-for that moves beyond unethical and transactional approaches of being-aside and being-with , as articulated by sociologist Zygmunt Bauman. The retrospective outlines how an initial researcher-driven model can evolve and transform to become one where people with lived-experience of mental ill-health and carer/family kinship group members hold clear decision-making roles, share in power to enact change, and move into co-researcher roles within research teams. Eight mechanisms are presented in the context of an explanatory theoretical model of change for co-design and coproduction, which are used to frame research co-design activities and provide space for continuous learning and evolution of the Co-Design Living Labs program

Kinship · Mental health · Political science · Psychiatry · Public relations · Sociology · Innovative Approaches in Technology and Social Development · Medicine · Nursing · Psychology · Service and Product Innovation · Technology Use by Older Adults

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Obras citantes distintas5
Citações por ano2,5
Intervalo de citações2024 - 2026 (3)
Velocidade de citaçãocurrent
Altamente citadoNão
Tipos de citaçãoNeutras: 5
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