Precision Medicine, Future Risk and the Present Self

Dados Bibliográficos

ID2248197
AutoresLisa M Hoffman (University of Washington Tacoma), Lisa Hoffman (0000-0001-5592-0339, University of Washington Tacoma, autor correspondente)
Ano2024
Volume40
Fascículo1
Páginas16-19
Data de publicação2024-02-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoAnthropology Today (JOURNAL)
Identificadores do periódicoISSN: 0268-540X • E-ISSN: 1467-8322
EditoraWiley (PUBLISHER • GB)
DOI10.1111/1467-8322.12864
OpenAlexW4391446708
IdiomaEN
Referências citadas39

In May 2015, my mother was diagnosed with stage IV pancreatic cancer and passed away three months later at the age of 78. Two years later, my older brother, only 53 at the time, was also diagnosed with pancreatic cancer. He passed away 15 months later. With this news, we engaged in the genetic retelling of family histories and connections, drawing genealogical maps on pieces of paper that reminded me of teaching Anthro 101 and starkly reimagined which relatives 'mattered' in our lives. As an anthropologist interested in subject formation and spatiality informed by a Foucauldian analytic, I have been propelled into exploring what it means to become 'high risk' (as a biologically related daughter and sister), subject to new regimes of surveillance and self-management espoused by the field of precision medicine. This paper addresses this experience and thus contributes to questions of subject formation within the already-existing truth-making practices of genetic probability and personalized risk management

Biomedical Ethics and Regulation · Ethics in Clinical Research · History · Medicine