Values in tension. Clinical quality and civic participation in umbilical cord blood banking in Italy
Dados Bibliográficos
| ID | 2249681 |
|---|---|
| Autores | Lorenzo Beltrame (0000-0001-7235-8683, Department of Sociology and Social Research University of Trento Trento Italy, autor correspondente) |
| Ano | 2020 |
| Volume | 42 |
| Fascículo | 4 |
| Páginas | 689-704 |
| Data de publicação | 2020-05-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Sociology of Health & Illness (JOURNAL) |
| Identificadores do periódico | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Editora | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13049 |
| PMID | 31845346 |
| OpenAlex | W2994636582 |
| Idioma | EN |
| Citações recebidas | 5 |
| Referências citadas | 34 |
In the dominant narrative of bioethics and biomedical discourse on public Umbilical Cord Blood (UCB) banking, the ethical value of donating UCB is unproblematically associated with the clinical quality of collected UCB. This article shows that this view is analytically untenable as it overlooks tensions and conflicts between the social values of donation and the clinical value of banked UCB in concrete arrangements regarding the logistics of UCB donation and collection. Adopting the notion of registers of valuing (Heuts and Mol 2013: Valuation Studies, 1, 2, 125-46) and analysing the case of the Italian network of public UCB banks and collection sites, this article shows how conflicting registers of valuing concerning UCB can shape different organisational models of UCB donation and collection, in which social values and clinical value are not unproblematically conflated. The article aims to demonstrate that the functioning of biobanking arrangements is dependent on how different values are accomplished and aligned in concrete practices of tissue donation and collection
Biobank · Bioethics · Business · Data collection · Donation · Epistemology · Narrative · Political science · Quality (philosophy · Social science · Sociology · Umbilical cord · Valuation (finance · Value (mathematics · Accounting · Ethics and Legal Issues in Pediatric Healthcare · Law · Medicine · Organ Donation and Transplantation · Palliative Care and End-of-Life Issues · Philosophy · Psychology · Social Psychology
Tissue Economies
Discourse and social change
‘It’s a family affair’
Umbilical Cord Blood
The hybrid bioeconomy of umbilical cord blood banking
Cords of collaboration
Locating tissue collections in tissue economies—deriving value from biomedical research
The collection of “quality” umbilical cord blood for stem cell treatments
For What It’s Worth
What Is a Good Tomato? A Case of Valuing in Practice
Enactments of Race in the UK’s Blood Stem Cell Inventory
Open consent, biobanking and data protection law
Cord blood banking – bio-objects on the borderlands between community and immunity
Immunitary bioeconomy
A Flank Movement in the Understanding of Valuation
Contradictions of value
| Obras citantes distintas | 5 |
|---|---|
| Citações por ano | 1,25 |
| Intervalo de citações | 2022 - 2026 (5) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 5 |