Advocating voice
Organisational, historical and social milieux of the Alzheimer's disease movement
Dados Bibliográficos
| ID | 2264580 |
|---|---|
| Autores | Renée L Beard (University of California, San Francisco, autor correspondente) |
| Ano | 2004 |
| Volume | 26 |
| Fascículo | 6 |
| Páginas | 797-819 |
| Data de publicação | 2004-09-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Sociology of Health & Illness (JOURNAL) |
| Identificadores do periódico | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Editora | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/j.0141-9889.2004.00419.x |
| PMID | 15383042 |
| OpenAlex | W2048845395 |
| Idioma | EN |
| Citações recebidas | 24 |
| Referências citadas | 34 |
The Alzheimer's disease movement, despite the stated willingness of the Alzheimer's Association, has yet to comprehensively utilise people with Alzheimer's as spokespersons. This is particularly noteworthy given the increasing availability of those with Alzheimer's who, especially in the early stages, are fully capable of advocating their position. Qualitative interviews and focus groups with people who have been diagnosed with Alzheimer's demonstrate the active role they are beginning to take in informing research, practice and policy. Interviews with affiliates of the national association aiming to advocate for people with memory loss depict an enduring struggle to incorporate these perspectives. Although primary obstacles may involve the structural dynamics within a society that stigmatises those who are old and/or forgetful, there are clear organisational contradictions within the Association itself preventing such mobilisation efforts. The dynamics shaping this health social movement's endeavours portray characteristics that obstruct an ability to embrace as spokespersons the individuals for whom it advocates
Aesthetics · Association (psychology · Disease · Focus group · Movement (music · Political science · Psychotherapist · Qualitative research · Social movement · Social science · Sociology · Data Analysis and Archiving · Law · Medicine · Mental Health and Patient Involvement · Psychology · Qualitative Research Methods and Ethics
Understanding the role of patient organizations in health technology assessment
Patient organizations in Finland
Assembling dementia care
New social and health movements
Alzheimer's Patient Organizations' Role in Enabling Citizenship Projects
Citizenship in action
Social policy and the internal dynamics of the senior rights movement
I am making a difference’
Managing disability and enjoying life
Co-creativity, well-being and agency
Staying connected
The political presence of persons living with dementia in parliament. A qualitative study into the dementia representation work of German parliamentarians
Let me grow old and senile in peace
The emergent modes of dementia activism
Tracking Transformations in Health Movement Organisations
Access to what? Alzheimer's disease and esthetic sense-making in the contemporary art museum
Resisting social disenfranchisement
Medical ideology as a double-edged sword
Óleo de coco, banha de porco, prazer de comer e os deslizamentos do saudável
Trust and Memory
A gente medica de acordo com a família
Future lived experience
Making sense of nonsense
Dualities of dementia illness narratives and their role in a narrative economy
From Senility to Alzheimer's Disease
The impact of national contexts on social movement structures
Passing on
The Discovery of Grounded Theory
The phenomenology of the social world
A Two-factor Model of Caregiving Appraisal and Psychological Well-Being
The normal and the pathological
Stress Reduction for Family Caregivers
Parents Together
In their voices
The medicalization of dementia
Towards a Theory of Dementia Care
The Construction and Deconstruction of Self in Alzheimer's Disease
The History of Alzheimer's Disease
Basics of Qualitative Research
Basics of Qualitative Research
The Normal and the Pathological
Racing for the Cure, Walking Women, and Toxic Touring
Struggling over Subjectivity
Structuring and destructuring the coarse of illness
Expansion and uncertainty
Waiting for the cure
Dementia and the phenomenon of social death
Human Services and the Voluntary Sector
| Obras citantes distintas | 24 |
|---|---|
| Citações por ano | 1,2 |
| Intervalo de citações | 2006 - 2023 (18) |
| Velocidade de citação | historical |
| Altamente citado | Não |
| Tipos de citação | Neutras: 24 |