Pular para o conteúdo principal

ETHNOS_APP

Início • Busca • Periódicos • Lista 0

Tell people and lose what I have

Care-seeking, concealment, and disclosure during Sierra Leone’s 2025 clade IIb mpox outbreak

Dados Bibliográficos

ID24148128
AutoresEric Nzirakaindi Ikoona (0000-0003-3402-1961, National Public Health Agency), Lucy Namulemo (0000-0003-0594-2956, Foothills Community-Based Interventions), Mary Magdalene Sinnah (National Public Health Agency), Mohamed Alex Vandi (National Public Health Agency), Foday Sahr (0000-0001-9816-4502, National Public Health Agency)
EditoresMaria Carinnes Alejandria (Universiti Brunei Darussalam)
Ano2026
Volume6
Fascículo9
Páginase0007337
Data de publicação2026-09-18
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoPLOS Global Public Health (JOURNAL)
Identificadores do periódicoISSN: 2767-3375 • E-ISSN: 2767-3375
EditoraPublic Library of Science (PLoS) (PUBLISHER)
DOI10.1371/journal.pgph.0007337
PMID42758771
OpenAlexW7213560463
IdiomaEN
Referências citadas30

During Sierra Leone’s 2025 clade IIb mpox outbreak, care-seeking occurred in a social context where formal presentation could expose symptoms, sexualised assumptions, and private relationships to families, workplaces, neighbours, and surveillance systems. We conducted a focused thematic analysis nested within a broader qualitative study across Western Area Urban, Western Area Rural, Bo, and Kenema from 10 March to 28 August 2025. The focused dataset held 70 transcripts. All 42 survivor interviews formed the primary evidence. The remaining 28 were contextual transcripts, drawn from interviews and focus group discussions with healthcare workers, contact tracers, and community members. Analysis used the Framework Method, dual coding, reflexive memos, matrix charting, and member checking with survivor participants. We identified four linked processes: protective misrecognition through socially safer diagnostic categories; disclosure risk as the point where stigma, cost, distance, relationship risk, and service trust converged; health system co-production of delay through early diagnostic uncertainty, referral gaps, and limited diagnostic access; and enabling conditions that made care-seeking safer, especially trusted intermediaries and visible confidentiality practices. Twenty-eight of the 42 survivor accounts met the criteria for pathway classification: 16 supported disclosure pathways and 12 forced concealment pathways, including three transitional cases that shifted after a trusted intermediary emerged. The other 14 survivor accounts lacked one or more pathway criteria and contributed contextual survivor evidence. Gender, intimate partnership risk, contact tracing visibility, and memories of Ebola and COVID-19 shaped disclosure decisions. The framework specifies how disclosure operates as a convergence point in high-stigma outbreak care-seeking. Outbreak preparedness should design confidentiality, intermediary, and contact-tracing systems that make disclosure safe enough to perform.

Confidentiality · Contact tracing · Context (archaeology) · Focus group · General partnership · Preparedness · Qualitative research · Referral · Thematic analysis · Poxvirus research and outbreaks · Vaccine Coverage and Hesitancy · Viral Infections and Outbreaks Research

  • The Health Stigma and Discrimination Framework

    Open Access•Anne Stangl, Valerie A Earnshaw et al.•BMC Medicine•2019

  • A systematic review of delay in the diagnosis and treatment of tuberculosis

    Open Access•Dag Gundersen Storla, Solomon Yimer et al.•BMC Public Health•2008

  • A systematic review of qualitative findings on factors enabling and deterring uptake of HIV testing in Sub-Saharan Africa

    Open Access•Maurice Musheke, Harriet Ntalasha et al.•BMC Public Health•2013

  • Using the framework method for the analysis of qualitative data in multi-disciplinary health research

    Open Access•Nicola Gale, Nicola K Gale et al.•BMC Medical Research Methodology•2013

  • Consolidated criteria for reporting qualitative research (Coreq)

    A Jaure, A Tong et al.•International Journal for Quality…•2007

  • Qualitative data analysis for applied policy research

    Jane Ritchie, Liz Spencer•Analyzing Qualitative Data•2010

  • Suffering in silence

    Open Access•Eric Nzirakaindi Ikoona, Lucy Namulemo et al.•PLOS Global Public Health•2026

  • Addressing stigma in infectious disease outbreaks

    Open Access•Amy Paterson, Piero Olliaro et al.•Frontiers in Public Health•2023

  • International healthcare workers’ experiences and perceptions of the 2022 multi-country mpox outbreak

    Open Access•Vanessa Apea, Boghuma K Titanji et al.•PLOS Global Public Health•2025

  • The ethics and value of contact tracing apps

    Open Access•Claudia Pagliari•Journal of Global Health•2020

  • A meta-analysis of disclosure of one's HIV-positive status, stigma and social support

    Rachel Smith, Kelly Rossetto et al.•AIDS Care•2008

  • Mpox knowledge, behaviours and barriers to public health measures among gay, bisexual and other men who have sex with men in the UK

    Open Access•Tom May, Lauren B Towler et al.•BMC Public Health•2023

  • Mpox Illness Narratives

    Open Access•A K Smith, Daniel Storer et al.•Qualitative Health Research•2024

  • Facilitating HIV Disclosure Across Diverse Settings

    Carla Makhlouf Obermeyer, Parijat Baijal et al.•American Journal of Public Health•2011

  • Naturalistic inquiry

    Open Access•Yvonna S Lincoln, Egon G Guba et al.•International Journal of…•1985

  • Sample Size in Qualitative Interview Studies

    Open Access•Kirsti Malterud, Volkert Dirk Siersma et al.•Qualitative Health Research•2016

  • From social integration to health

    Open Access•Lisa F Berkman, Lisa Berkman et al.•Social Science & Medicine•2000

  • HIV and Aids-related stigma and discrimination

    Open Access•Richard Parker, Peter Aggleton•Social Science & Medicine•2003

  • The disclosure processes model

    Stephenie R Chaudoir, Jeffrey D Fisher•Psychological Bulletin•2010

  • Conceptualizing Stigma

    Bruce G Link, Lexi Harari et al.•Annual Review of Sociology•2001

Velocidade de citaçãohistorical
Altamente citadoNão
Ethnos_APP • Projeto Open Source • Licença MIT • Frontend v2.0.0 • Privacidade e Cookies • Documentação da API: api.ethnos.app/docs • Código da API: GitHub • DOI: 10.5281/zenodo.17049435 • Código do Frontend: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae