Reshaping Adolescent and Young Adult Cancer Care and Support Through Participatory Engagement
Dados Bibliográficos
| ID | 3402625 |
|---|---|
| Autores | Cheryl Heykoop (0000-0002-0869-7485), Alannah Smrke (0000-0002-9811-8159, Supportive Care, BC Cancer, Vancouver, BC, Canada), Jennifer Wolfe, Lillian K Rogers, Tiffany T Hill, Jonathan Avery (0000-0002-1992-8867), Ada J Okonkwo-Dappa, Param K Gill, Sarah Weller (0000-0003-3987-7486, Supportive Care, BC Cancer, Vancouver, BC, Canada), Shelley Peacock (0000-0002-8243-8721, BC Cancer Agency), Stuart Peacock (Research, BC Cancer, Vancouver, BC, Canada) |
| Ano | 2025 |
| Volume | 24 |
| Data de publicação | 2025-09-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | International Journal of Qualitative Methods (JOURNAL) |
| Identificadores do periódico | ISSN: 1609-4069 • E-ISSN: 1609-4069 |
| Editora | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/16094069251378343 |
| OpenAlex | W7082633063 |
| Idioma | EN |
| Referências citadas | 44 |
It is well established that AYAs, defined as individuals between 15-39 years of age, require specific oncologic and supportive care distinct from children and older adults. Yet cancer care and support systems often do not meet the unique needs of AYAs. In British Columbia (BC), approximately 1050 AYAs are diagnosed with cancer each year. There is currently limited provincial AYA cancer care and support programming. In 2022, the Anew Research Collaborative and BC Cancer, met with over 70 AYAs and cancer care allies (health care providers, clinicians, researchers, and supporters) and facilitated a patient-oriented, Participatory Action Research session to reimagine AYA cancer care and support in BC. In this article we discuss our participatory research process and subsequent advances and future opportunities to create a provincial AYA cancer care and support program in BC. We discuss key factors to consider when engaging AYAs to transform cancer care and support systems including considering the care and support needs of AYAs, using participatory methods to support collaboration and disrupt power structures, and orienting the process and outcomes towards action and/or change. Additionally, we reinforce the importance of providing counselling supports when working within difficult or traumatic contexts and the need to engage AYAs from underrepresented groups. Using a participatory, patient-oriented research approach, this project lays the foundation for meaningful engagement of AYAs, alongside cancer care allies, to create tangible changes in AYA cancer care and support that respond the unique experiences, needs and priorities of AYAs; and the approaches used are applicable across many health care contexts
Action (physics · Call to action · Cancer · Cancer survivor · Citizen journalism · Health care · Participatory action research · Participatory evaluation · Session (web analytics · Electrical and Electromagnetic Research · Geochemistry and Geologic Mapping · Geological Modeling and Analysis
The Sage Handbook of Action Research
Imagining Futures Amidst the Uncertainty of Living
Creative action research
Health and healthcare equity within the Canadian cancer care sector
Disrupted identities, invisibility and precarious support
Access to cancer care among Indigenous peoples in Canada
A Participatory Group Process to Analyze Qualitative Data
Challenging the Boundaries of the Possible
Participatory action research
Biomedical scientists' perception of the social sciences in health research
Getting at Equality
| Velocidade de citação | historical |
|---|---|
| Altamente citado | Não |