Challenges in achieving positive outcomes for children with complex congenital conditions

Our aim is to examine a series of systems-level challenges to the continuity of care of a newborn (i.e. a particular case) in the rural–urban context. These challenges include the state-wide system whereby inadequate bed numbers relative to demand are monitored on a daily basis (bed management), specialist medical expertise as a resource, and the flow of information between hospitals in a rural–urban divide. Whether quality of care is maintained in light of these challenges is dependent on the relationships and 'invisible' work of a number of clinicians. Of critical importance are issues involving affective or invisible work and the solidary networks and relationships of clinicians. Ethnographic participant-observations were made of clinical teams and their networks in an Australian rural–urban health care service involving the multiple hospital admissions of a seriously-ill infant. The findings demonstrate that the system works because of clinicians' willingness to enact their practice knowledge, the networking they undertake, their resilience and the affective labour they perform to attend to patients' and families' needs. Ultimately the continuity of care is embedded in the quality of relationships as much as in specialist knowledge or professional expertise.Keywords: networkingcontinuity of careoutcomesaffective labourresources of resiliencesociology

Continuity of care · Health care · Political science · Project commissioning · Public relations · Publishing · Sociology · Cerebral Palsy and Movement Disorders · Child and Adolescent Health · Family and Disability Support Research · Law · Medicine · Nursing · Psychology · Gerontology

• The continuity of care paradox in paediatric primary care

  Open Access•Zuzana Kotherová, Jaroslava Hasmanová Marhánková et al.•SSM - Qualitative Research in…•2026

  Incluir item

• Emotional regulation in the workplace

  Alicia A Grandey•Journal of Occupational Health…•2000

  Incluir item

• Disturbing Observations as a Basis for Collaborative Research

  Jessica Mesman•Science as Culture•2007

  Incluir item

• Intensities of feeling

  Nigel Thrift•Geografiska Annaler Series B…•2004

  Incluir item

• Works and lives

  Clifford Geertz•Works and lives•1988

  Incluir item

• Sources of Practice Knowledge Among Nurses

  Open Access•Carole A Estabrooks, William Rutakumwa et al.•Qualitative Health Research•2005

  Incluir item

• Doctors' thinking about 'the system' as a threat to patient safety

  Open Access•J Waring, Justin J Waring•Health An Interdisciplinary…•2007

  Incluir item

• Visibilising clinical work

  Rick Iedema, D Long et al.•Health Sociology Review•2006

  Incluir item

• What Is Going on

  Open Access•Kaja Finkler, Cynthia Hunter et al.•Journal of Contemporary Ethnography•2008

  Incluir item

• Untangling the web of critical incidents

  Cynthia Hunter, Cynthia L Hunter et al.•Anthropology and Medicine•2008

  Incluir item

• When the field is a ward or a clinic

  D Long, Cynthia Hunter et al.•Anthropology and Medicine•2008

  Incluir item