Contested illness, contested identity
How women with fibromyalgia construct legitimacy online
Dados Bibliográficos
| ID | 4597576 |
|---|---|
| Autores | Joanna Kerr (University of the Fraser Valley), Jenna M Kerr, Carey Demichelis (University of the Fraser Valley) |
| Ano | 2025 |
| Volume | 381 |
| Páginas | 118251 |
| Data de publicação | 2025-09-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Social Science & Medicine (JOURNAL) |
| Identificadores do periódico | ISSN: 0277-9536 • E-ISSN: 1873-5347 |
| Editora | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.socscimed.2025.118251 |
| PMID | 40505500 |
| OpenAlex | W4410796305 |
| Idioma | EN |
| Citações recebidas | 4 |
| Referências citadas | 36 |
This research explores the lived experiences of women with fibromyalgia (FM) and the various ways they go about legitimizing a contested medical condition. Through ethnographic observation in a private online community, "Fibro Women Canada," and in-depth interviews with its members, we explore how women work to be seen as legitimate pain patients in the eyes of their healthcare providers. We argue that FM produces a dilemma of legitimacy, a dilemma of identity, and a dilemma of morality for its sufferers. In the face of these dilemmas, Fibro Women Canada functions as a backstage environment that supports two distinct, yet interwoven, forms of legitimacy building: (1) illness literacy, and (2) identity work. In particular, we attend to the moral stakes of seeking biomedical recognition, illuminating the every-day strategies that women use to construct themselves as deserving of care
Aesthetics · Construct (python library · Fibromyalgia · Identity (music · Legitimacy · Political science · Politics · Psychiatry · Social group · Social identity theory · Social science · Sociology · Fibromyalgia and Chronic Fatigue Syndrome Research · Gender Studies · Law · Psychology
Chronic illness – a disruption in life
The american college of rheumatology 1990 criteria for the classification of fibromyalgia
Internet Research in Psychology
The American College of Rheumatology Preliminary Diagnostic Criteria for Fibromyalgia and Measurement of Symptom Severity
The Girl Who Cried Pain
Netnography
Listening to Lyrica
I am not the kind of woman who complains of everything
Post Your Journey
Is chronic widespread pain biographically disruptive
It is hard work behaving as a credible patient
Even my sister says I'm acting like a crazy to get a check
Everyone thinks I am just lazy
Bounding Biomedicine
Self-Help Literature and the Making of an Illness Identity
Chronic illness as biographical disruption
Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept
| Obras citantes distintas | 4 |
|---|---|
| Citações por ano | 4 |
| Intervalo de citações | 2025 - 2026 (2) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 4 |