From a Single Voice to Diversity
Reframing 'Representation' in Patient Engagement
Dados Bibliográficos
There has been a growing emphasis on consumer representation in the development of health policy, services, research, and education. Existing literature has critiqued how discourses of representativeness can disempower consumers working in health systems. The context of the current study is consumer engagement in the development of COVID-19 triage policy and practice in a local health service. Consumer engagement has often been an afterthought in the COVID response, with few examples of consumers in agenda-setting or decision-making roles. In the Australian Capital Territory, 26 consumer, carer, and community groups worked together with academics and clinicians to develop these principles. Interviews were conducted with stakeholders (including consumers, clinicians, and other health professionals) to evaluate the development of triage principles. A discursive psychological approach to analysis was used to explore participants' understandings about and constructions of consumers being representative (or not) and how this may reproduce power imbalances against consumers. The results explore two distinct ways in which participants talked about consumer representativeness: the first drawing on rhetoric about consumers as lay members of the public (as distinct from being professionally engaged in the health sector), and the second in terms of consumer representatives being diverse and having intersectional identities and experiences. Expectations about consumers to be representative of the general population may reproduce traditional power imbalances and silence lived experience expertise. These power imbalances may be challenged by a shift in the way representativeness is conceptualised to requiring health services to seek out diverse and intersectionally marginalised consumers
Cognitive reframing · Health care · Political science · Public relations · Representativeness heuristic · Sociology · Empathy and Medical Education · Mental Health and Patient Involvement · Patient-Provider Communication in Healthcare · Psychology · Social Psychology
Strengthening health literacy research through consumer engagement
From community engagement to lived experience leadership
‘Working Together to Meet in the Middle’. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research
Constructs, Predictive Factors and Measures
Coproducing an Ecological Momentary Assessment Measurement Burst Mental Health Study With Young People
The Perspectives of Healthcare Professionals and Managers on Patient Involvement in Care Pathway Development
Involving Knowledge Users in Health Services Research
Representing Reality
Exploratory Research in the Social Sciences
Discourse analysis and discursive psychology.
Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety
Rhetoric of representation
Community engagement for Covid-19 prevention and control
Prenatal Care Use Among Women of Low Income
Generalizability in qualitative research
The involvement of people living with HIV/Aids in community-based organizations
“An Active, Productive Life”
A Hierarchy of Power
Consumer engagement in health services in Queensland, Australia
Health systems of oppression
Challenges Experienced by Paid Peer Providers in Mental Health Recovery
Evaluating Explicit and Implicit Stigma of Mental Illness in Mental Health Professionals and Medical Students
"How can anybody be representative for those kind of people?" Forms of patient representation in health research, and why it is always contestable
User Involvement in Mental Health Services
| Obras citantes distintas | 7 |
|---|---|
| Citações por ano | 3,5 |
| Intervalo de citações | 2024 - 2026 (3) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 7 |