Family Caregivers' Trajectories of Distress While Caring for a Person With Serious Mental Illness
Dados Bibliográficos
| ID | 4645653 |
|---|---|
| Autores | Anne Martha Kalhovde (0000-0001-6474-7451, Jæren District Psychiatric Center, Bryne, Norway), Gabriele Kitzmüller (0000-0002-8528-6137, UiT, the Arctic University of Norway, Narvik, Norway, autor correspondente) |
| Ano | 2024 |
| Volume | 34 |
| Fascículo | 1-2 |
| Páginas | 154-165 |
| Data de publicação | 2024-01-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Qualitative Health Research (JOURNAL) |
| Identificadores do periódico | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Editora | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/10497323231203627 |
| PMID | 37905732 |
| OpenAlex | W4388033180 |
| Idioma | EN |
| Citações recebidas | 9 |
| Referências citadas | 58 |
Serious mental illness (SMI) can significantly impact the lives of individuals and their families. These families often experience great emotional distress over time due to the early onset of SMI, which in turn leads to long-term trajectories and only partial recovery. However, we do not fully understand the emotional distress of family caregivers. Thus, our aim was to enrich the understanding of the lived experiences of family caregivers' emotional trajectories of distress while caring for persons with SMI. We conducted a secondary analysis using a hermeneutic approach to the narratives of seven family caregivers from a study on living with voices unheard by others. Participants' trajectories of emotional distress came forth as being thrust on an unpredictable, intensely worrisome, and indefinite journey. The following themes highlighted this tumultuous journey: fumbling in the dark trying to grasp the incomprehensible, "on your toes"-enduring unpredictability, facing different forms of fear, and battling waves of sadness and regret. Caregivers face multiple threats to their well-being and sometimes even to their health. Their distress appeared to vary according to their relationship with the person with SMI, whether they lived with the ill person, illness trajectory, and amount of violent or suicidal behavior. The results underscore the need for individualized and timely information, opportunities for dialogue with healthcare providers with and without the person with SMI, and inclusion in care planning. Caregivers who have experienced trauma, threats of violence, and rejection require special attention
Anger · Anxiety · Distress · Emotional distress · Family caregivers · Mental health · Mental illness · Psychiatry · Regret · Sadness · Clinical Psychology · Family Caregiving in Mental Illness · Family Support in Illness · Medicine · Mental Health Treatment and Access · Nursing · Psychology
Nurturing Creativity whilst Caring
The caregiving journey
“My World Is Gone”
Family hardiness among primary caregivers of breast cancer patients in Hunan Province
Living on the edge
The Lived Experience of Informal Caregivers of People Who Have Severe Mental Illness and Coexisting Long‐Term Conditions
Navigating care and challenges
Parenting on High Alert
Treatment Pressures and the Predicament of Family Care
Disenfranchised grief in historical and cultural perspective.
Hermeneutic research in nursing
Ambiguous Loss Theory
The Burden of Schizophrenia on Caregivers
Content analysis of the emotions affecting caregivers of relatives with schizophrenia
Accounting for research fatigue in research ethics
Conducting secondary analysis of qualitative data
Nonreligious coping and religious coping as predictors of expressed emotion in relatives of patients with schizophrenia
‘We didn’t have a clue’
Burden of informal care giving to patients with psychoses
Filling the Void
The Experiences of Parents Providing Support to Adult Children with Schizophrenia
Gender Differences in Caregiver Stressors, Social Resources, and Health
The Context and Process of Theory Development
Perceived Isolation among Family Caregivers of People with Mental Illness
Complicated Grief, Depression, Health and Attachment Style in First Degree Relatives of Individuals with a Chronic Psychotic Disorders
Naturalistic inquiry
Dialectic and dialogue in the hermeneutics of Paul Ricœur and H.G. Gadamer
Ethical and Representational Issues in Qualitative Secondary Analysis
Understanding the Experiences of Hearing Voices and Sounds Others Do Not Hear
Health Professionals as Mothers of Adult Children With Schizophrenia
Making Sense of an Unknown Terrain
The Possibilities and Pitfalls of Doing a Secondary Analysis of a Qualitative Data Set
Mental Illness, Caregiving, and Emotion Management
| Obras citantes distintas | 9 |
|---|---|
| Citações por ano | 4,5 |
| Intervalo de citações | 2024 - 2026 (3) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 9 |