Potential Motivations For and Perceived Risks In Research Participation

Ethics in Health Research

Dados Bibliográficos

ID4655100
AutoresYandisa Sikweyiya (0000-0001-7153-5828, Medical Research Council, Pretoria, South Africa), Rachel Jewkes (0000-0002-4330-6267, Medical Research Council, Pretoria, South Africa)
Ano2013
Volume23
Fascículo7
Páginas999-1009
Data de publicação2013-07-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732313490076
PMID23660499
OpenAlexW2172248325
IdiomaEN
Citações recebidas12
Referências citadas37

In a South African urban-township-based ethnographic study with adult 19 women and 7 men, we explored people's motivations for and experiences of research participation and perceptions of being asked about sensitive experiences, including gender-based violence. We also explored the implications of participation. Several informants were motivated by self-interest to participate in research, whereas others were more altruistic; yet with many there was a complex overlap. We found that altruism, as a motivation to participate in research, is a muddled and multifaceted issue that needs careful unpacking and nuanced discussion to understand. Breach of confidentiality was perceived as a main risk, and gender differences were apparent in reporting feared consequences, with women primarily fearing possible violent reprisals from partners. We conclude that the decision to participate in research seems to be a balanced and conditional process wherein individuals assess the potential benefits and risks to themselves and the potential contribution to others

Confidentiality · Ethnography · Perception · Political science · Qualitative research · Sociology · Unpacking · Ethics in Clinical Research · Ethics in medical practice · Psychology · Qualitative Research Methods and Ethics · Social Psychology