Development and Implementation of the Family Caregiver Decision Guide

Dados Bibliográficos

ID4656196
AutoresChris A Robinson (0000-0003-4576-4218, The University of British Columbia, Kelowna, British Columbia, Canada, autor correspondente), Joan L Bottorff (0000-0001-9724-5351, The University of British Columbia, Kelowna, British Columbia, Canada), Barbara Pesut (0000-0002-1063-7190, The University of British Columbia, Kelowna, British Columbia, Canada), Janelle Zerr (The University of British Columbia, Kelowna, British Columbia, Canada)
Ano2020
Volume30
Fascículo2
Páginas303-313
Data de publicação2020-01-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732319887166
PMID31744378
OpenAlexW2989620747
IdiomaEN
Citações recebidas2
Referências citadas36

Care provided by family is the backbone of palliative care in Canada. The critical roles performed by caregivers can at the same time be intensely meaningful and intensely stressful. However, experiences of caregiving can be enhanced when caregivers feel they are making informed and reflective decisions about the options available to them. With this in mind, the purpose of this five-phase research project was to create a Family Caregiver Decision Guide (FCDG). The Guide entails four steps: thinking about the current caregiving situation, imagining how the caregiving situation may change, exploring available options, and considering best options if caregiving needs change. The FCDG was based on available evidence and was developed and refined using focus groups, cognitive interviewing, and a feasibility and acceptability study. Finally, an interactive version of the Guide was created for online use ( https://www.caregiverdecisionguide.ca ). In this article, we describe the development, evaluation, and utility of the FCDG

Cognition · Cognitive interview · Family caregivers · Focus group · Interview · Medical education · Palliative care · Sociology · Applied Psychology · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Patient-Provider Communication in Healthcare · Psychology