Urban American Indian and Alaska Native Data Sovereignty
Ethical Issues
Dados Bibliográficos
| ID | 4658705 |
|---|---|
| Autores | Emily A Haozous (0000-0003-1363-1453, autor correspondente), Juliet Lee (0000-0003-0013-8184), Claradina Soto (0000-0003-1939-4022) |
| Ano | 2021 |
| Volume | 28 |
| Fascículo | 2 |
| Páginas | 77-97 |
| Data de publicação | 2021-09-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | American Indian and Alaska Native Mental Health Research (JOURNAL) |
| Identificadores do periódico | ISSN: 0893-5394 • E-ISSN: 1533-7731 |
| Editora | Centers for American Indian and Alaska Native Health (PUBLISHER) |
| DOI | 10.5820/aian.2802.2021.77 |
| PMID | 34586627 |
| OpenAlex | W3203410527 |
| Idioma | EN |
| Citações recebidas | 8 |
| Referências citadas | 13 |
This paper examines the ethical issues underlying research with urban American Indians and Alaska Natives (AI/ANs) through the lens of tribal sovereignty. There are 574 federally recognized tribes within the United States. Each of those tribes is recognized by the federal government as having sovereign status, an important political designation that ensures that decisions impacting tribal peoples must be made after consultation with those nations. Most AI/AN people live away from their designated tribal lands, yet their sovereign rights are frequently only recognized when living on tribal lands. These urban AI/ANs are still considered citizens of their sovereign nations, yet they lack the protections afforded to those who live on tribal lands, including protections surrounding research with their tribal communities. We explore the Belmont Report and related documents and demonstrate their inadequacy in considering the cultural and ethical concerns specific to protecting urban AI/ANs. We also provide several solutions to help guide future institutional policies regarding research with urban AI/ANs that honors Indigenous data sovereignty, including consultation, partnership with community advisory boards, employment of data use agreements, and ensuring informed consent
Economic growth · General partnership · Indigenous · Political science · Politics · Self-determination · Sovereignty · Ethics in Clinical Research · Law · Public Administration
Indigenous research ethics and Tribal Research Review Boards in the United States
Risk and Resilience Among Families in Urban AI/AN Communities
Advancing Administrative Data Justice Through Indigenous Representation and Co-Governance Methodologies
Virtual Research with Urban Native Young Women
Ethical publishing in ‘Indigenous’ contexts
Behavioral health services in Urban American Indian Health Programs
People love playing the ‘what are you?’ game with me”
Indigenous Cultural Identity Protects Against Intergenerational Transmission of ACEs Among Indigenous Caregivers and Their Children
Data as a Strategic Resource
Nation v. Municipality
Personhood and Autonomy in Multicultural Health Care Settings
Impacts of alcohol availability on Tribal lands where alcohol is prohibited
Creating Research Capacity Through a Tribally Based Institutional Review Board
Youth-Led Tobacco Prevention
Beyond the Belmont Principles
The Belmont Report at 40
Causes and Disparities in Death Rates Among Urban American Indian and Alaska Native Populations, 1999–2009
Enhancing Stewardship of Community-Engaged Research Through Governance
Promoting Ethical Research With American Indian and Alaska Native People Living in Urban Areas
Breast Cancer Mortality Among American Indian and Alaska Native Women, 1990–2009
| Obras citantes distintas | 8 |
|---|---|
| Citações por ano | 2 |
| Intervalo de citações | 2022 - 2026 (5) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 8 |