The Unknown/The Unanticipated

The aim of this study was to explore the pre- and postsurgical journey to correct severe abdominal lipodystrophy of a woman living as AIDS defined for over 23 years. It utilized interpretative phenomenological analysis (IPA) and a single-case-study approach to capture the subjective understanding and sense-making of this surgical process. Verbatim transcripts of seven semi-structured interviews, three participant-created word boards of words or phrases clipped from magazines, field notes, and a reflexive journal were collected as data. Analysis revealed two superordinate themes: the unknown and the unanticipated. These themes simultaneously manifest with shared and nuanced meanings, including the unknown and unanticipated of surviving AIDS and discovering lipodystrophy, the unknown and the unanticipated of the surgical intervention itself, and finally the unknown and the unanticipated of postsurgical complications and experiences within outpatient and inpatient medical settings

Family medicine · Interpretative phenomenological analysis · Lipodystrophy · Participant observation · Psychiatry · Qualitative research · Reflexivity · Social science · Sociology · Superordinate goals · Chronic Disease Management Strategies · Healthcare cost, quality, practices · Medicine · Obesity and Health Practices · Psychology · Social Psychology

• Combating HIV stigma in health care settings

  Open Access•José Manuel Nieto Soria, Laura Nyblade et al.•Journal of the International AIDS…•2009

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• Shared Decision Making — The Pinnacle of Patient-Centered Care

  Michael J Barry, Susan Edgman-Levitan et al.•New England Journal of Medicine•2012

  Incluir item

• Stigma

  Erving Goffman•Stigma•2009

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• Interpretative Phenomenological Analysis

  James Briggs•QMiP Bulletin•2010

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• 'In an important way, I did die'

  Dale E Brashers, Judith L Neidig et al.•AIDS Care•1999

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• Balancing disfigurement and fear of disease progression

  Nancy Reynolds, N R Reynolds et al.•AIDS Care•2006

  Incluir item

• My Body, My Stigma

  Open Access•Nelson Varas‐díaz, Nelson Varas-Díaz et al.•Qualitative Report•2015

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• From hospital to community psychiatry

  Open Access•Maxwell Jones•Community Mental Health Journal•1970

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• Giving voice and making sense in interpretative phenomenological analysis

  Michael Larkin, Simon Watts et al.•Qualitative Research in Psychology•2006

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• Incorporating Pharmakon

  Open Access•A Persson•Body & Society•2004

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• The boundaries of the self and the unhealthy other

  Open Access•Richard Crawford, Robert Crawford•Social Science & Medicine•1994

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