I Never Know From One Day to Another How I Will Feel

Pain and Uncertainty in Women With Endometriosis

Dados Bibliográficos

ID4699368
AutoresElaine Denny (0000-0002-8118-4301, Birmingham City University, Perry Barr, Birmingham, United Kingdom, autor correspondente)
Ano2009
Volume19
Fascículo7
Páginas985-995
Data de publicação2009-07-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732309338725
PMID19470614
OpenAlexW2147147674
IdiomaEN
Citações recebidas34
Referências citadas28

Endometriosis is a chronic condition of women in which endometrial tissue is present outside of the uterus. It is characterized by pelvic pain. The aim of this prospective study was to explore women's experience of living with endometriosis. A sample of 30 women was recruited from a dedicated endometriosis clinic. Semistructured interviews were conducted upon recruitment and after one year, these data being supplemented by diary keeping by a volunteer sample. As a storytelling approach was utilized for data collection, narrative analysis was considered most appropriate. The findings are presented using the concept of uncertainty, which has been found in previous research to be a feature of long-term illness. Uncertainty exists around diagnosis, the course of the disease, and the future. It is argued that the way in which the pain of endometriosis is interpreted and managed by women and health professionals is integral to this uncertainty

Endometriosis · Family medicine · Gynecology · Narrative · Obstetrics · Pelvic pain · Qualitative research · Sociology · Storytelling · Education, Leadership, and Health Research · Endometriosis Research and Treatment · Medicine · Psychology · Surgery