Chronic Disease Self-Management by People With HIV

Dados Bibliográficos

ID4725901
AutoresKaralyn Mcdonald (Monash University, Melbourne, Victoria, Australia), Sean Slavin (University of New South Wales, Sydney, New South Wales, Australia), Marian K Pitts (La Trobe University, Melbourne, Victoria, Australia), Marian Pitts (La Trobe University), Julian H Elliott (Monash University, Melbourne, Victoria, Australia), Julian Elliott (0000-0002-9165-5875, Burnet Institute), Healthmap Project Team
Ano2016
Volume26
Fascículo6
Páginas863-870
Data de publicação2016-05-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732315600415
PMID26290540
OpenAlexW1899257945
IdiomaEN
Citações recebidas16
Referências citadas35

As HIV has transitioned into a chronic disease, reappraisal of clinical management has occurred with chronic disease self-management (CDSM) as one possibility. However, despite extensive work on CDSM across a range of diseases, little attention has focused on psychosocial contexts of the lives of people for whom programs are intended. This article reports semi-structured interviews used to explore health practices and motivations of 33 people with HIV (PWHIV) in Australia. Within participants' accounts, different forms of subjectivity and agency emerged with implications for how they understood and valued health-related behaviors. Four themes arose: health support and disclosure, social support and stigma, employment/structure, and health decisions beyond HIV. The experience of stigma and its intersection with CDSM remains relatively un-chartered. This study found stigma shapes agency and engagement with health. Decisions concerning health behaviors are often driven by perceived social and emotional benefit embedded in concerns of disclosure and stigma

Family medicine · Psychiatry · Psychosocial · Qualitative research · Self-management · Social support · Sociology · Diabetes Management and Education · HIV-related health complications and treatments · HIV/AIDS Research and Interventions · Medicine · Psychology · Social Psychology · Gerontology