The Anticipatory Politics of Improving Childhood Survival for Sickle Cell Disease
Dados Bibliográficos
| ID | 5337366 |
|---|---|
| Autores | Gina Jae (0000-0002-1798-9519, Columbia University, autor correspondente) |
| Ano | 2018 |
| Volume | 43 |
| Fascículo | 6 |
| Páginas | 1122-1141 |
| Data de publicação | 2018-11-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Science Technology & Human Values (JOURNAL) |
| Identificadores do periódico | ISSN: 0162-2439 • E-ISSN: 1552-8251 |
| Editora | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/0162243918778342 |
| PMID | 31406391 |
| OpenAlex | W2806120187 |
| Idioma | EN |
| Citações recebidas | 5 |
| Referências citadas | 26 |
Crediting scientific discovery for prolonging life is pervasive in biomedical histories of the genetic blood disorder, sickle cell disease. This includes the preventive strategies, such as newborn screening, that have underwritten the success of its life-extending interventions. Newborn screening is a technology that relies not only upon intact health infrastructures but also expertise and enhanced vigilance on the part of caregivers to anticipate complications while they are still open to circumvention. This paper posits that even after overcoming institutional barriers to make newborn screening equitably available, care and vigilance are resources that are themselves subject to what I term anticipatory politics, where structural conditions also stratify expectations for the future, including the affective appeal of medical innovations. This paper elaborates the paradigm of anticipatory politics through an ethnographic examination of newborn screening to connect the comprehensive care practices that have improved survival for sickle cell disease, and as the burden of mortality shifts to young adulthood, to expose how those who are resourced to care for these futures preferentially stand to benefit from preventive interventions
Disease · Futures contract · Health care · Intensive care medicine · Pathology · Political science · Politics · Psychiatry · Psychological intervention · Hemoglobinopathies and Related Disorders · Medicine · Prenatal Screening and Diagnostics · Psychology · Romani and Gypsy Studies
| Obras citantes distintas | 5 |
|---|---|
| Citações por ano | 1,25 |
| Intervalo de citações | 2022 - 2025 (4) |
| Velocidade de citação | recent |
| Altamente citado | Não |
| Tipos de citação | Neutras: 4 |