Managing a Medically and Socially Complex Life

Women Living With Lupus

Dados Bibliográficos

ID5454825
AutoresCindy Mendelson (the University of New Mexico College of Nursing, Albuquerque, autor correspondente)
Ano2006
Volume16
Fascículo7
Páginas982-997
Data de publicação2006-09-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732306290132
PMID16894227
OpenAlexW2107129276
IdiomaEN
Citações recebidas12
Referências citadas27

Systemic lupus erythematosus is a systemic autoimmune illness that affects women more frequently than men and disproportionately affects women of color. Because so little is known about living with lupus, the author undertook a qualitative study to identify salient aspects of affected women's daily experiences. Seven women with lupus participated in three interviews, each separated by 1 month, and they also maintained a daily symptom journal. In addition, 23 women recruited from the Internet submitted narrative accounts of their experiences of living with lupus. Analysis of the findings suggests that living with lupus involves managing a medically and socially complex life. The complexity of life with lupus is dimensionalized by the overlapping themes, identified as a life of uncertainty, a shifting sense of identity, and managing the financial burden of illness

Disease · Lupus erythematosus · Narrative · Narrative inquiry · Qualitative research · Sociology · Systemic lupus erythematosus · Fibromyalgia and Chronic Fatigue Syndrome Research · Medicine · Psoriasis: Treatment and Pathogenesis · Psychology · Systemic Lupus Erythematosus Research · Gerontology · Immunology · Internal Medicine