Exploring One's Own Human Condition

Adults Affected by Cystic Fibrosis

Dados Bibliográficos

ID5454884
AutoresCaroline Huyard (0000-0002-7454-7039, École des Hautes Études en Sciences Sociales, Paris, France, autor correspondente)
Ano2008
Volume18
Fascículo4
Páginas535-544
Data de publicação2008-04-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732308315108
PMID18354051
OpenAlexW2125326415
IdiomaEN
Citações recebidas1
Referências citadas27

Drawing on a sample of 11 interviews in France with adults affected by cystic fibrosis, and applying grounded-theory analysis, I describe illness-related learning processes in the case of persons affected by a genetic disorder with early onset. Three outcomes might be of interest to health professionals. First, the diagnosis of genetic disease does not imply that the patients consider themselves to be ill. The meaning of being affected by a genetic disorder has to be understood. Second, these patients gain a particular knowledge of their illness that helps them undertake or avoid certain actions to achieve goals they consider important, through a process I call 'critical internalization.' Third, these patients exhibit similarities with Freidson's classical medical practitioner's clinical mind, although health is not at all their main priority

Cystic fibrosis · Developmental psychology · Disease · Grounded theory · Health care · Health professionals · Pathology · Psychiatry · Psychotherapist · Qualitative research · Sociology · Clinical Psychology · Hermeneutics and Narrative Identity · Medicine · Mental Health and Psychiatry · Psychology