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Working With Children to Develop Dimensions for a Preference-Based, Generic, Pediatric, Health-Related Quality-of-Life Measure

Dados Bibliográficos

ID5454933
AutoresKatherine J Stevens (The University of Sheffield, Sheffield, United Kingdom,), Katherine Stevens (0000-0002-9018-6413, University of Sheffield, autor correspondente)
Ano2010
Volume20
Fascículo3
Páginas340-351
Data de publicação2010-03-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Health Research (JOURNAL)
Identificadores do periódicoISSN: 1049-7323 • E-ISSN: 1552-7557
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732309358328
PMID20054040
OpenAlexW2165813562
IdiomaEN
Citações recebidas29
Referências citadas16

Use of preference-based measures (PBM) of health-related quality of life (HRQoL) is increasing. PBMs allow the calculation of quality-adjusted life years, which can be used in decision making. Research in the field of pediatric PBMs is lacking. This work is the first stage in the development of a new generic, pediatric PBM of HRQoL. Seventy-four qualitative interviews were undertaken with children to find out how health affects their lives. Sampling was purposive, balancing primarily for health within age, with gender and ethnicity as secondary criteria. Interviews covered a wide range of health conditions, and children were successfully able to articulate how their health affected their lives. Eleven dimensions of HRQoL were identified, covering social, emotional, and physical aspects, in common with other generic pediatric HRQoL measures, but differ by including feeling jeal'ous and feeling tired/weak and not including dimensions related to parental, family, or behavioral issues

Developmental psychology · Environmental health · Ethnic group · Feeling · Health related quality of life · Nonprobability sampling · Population · Preference · Qualitative research · Sociology · Childhood Cancer Survivors' Quality of Life · Clinical Psychology · Health Systems, Economic Evaluations, Quality of Life · Medicine · Pharmaceutical studies and practices · Psychology · Social Psychology

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Obras citantes distintas29
Citações por ano1,71
Intervalo de citações2009 - 2026 (18)
Velocidade de citaçãocurrent
Altamente citadoNão
Tipos de citaçãoNeutras: 26
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