Spinning Tales from the World Wide Web

How do you learn about the texture of life from children with medical problems, and how do you translate their narratives into a web site for all to read? This article attempts to answer those questions. It describes the process of using qualitative research strategies to gather data for a Web-based project, 'Band-Aides and Blackboards: When Chronic Illness, or Some Other Medical Problem Goes to School.' The article discusses the rationale for using the Internet as a forum for collecting data and explores the advantages and disadvantages of its use. In addition to the Internet, focus groups and individual interviews were identified as rich sources of stories from children with serious health problems, and the article examines their utility. In addition, it details the process of publicizing an invitation, attracting children, and acquiring parental permission for their inclusion. The text takes a look at the barriers that were encountered along the route and addresses each of them, describing as it does the strategies employed to overcome them. A number of web addresses from the site are included as reference so that readers can go 'on-line'for a more in-depth understanding of the process

Focus group · Internet privacy · Medical education · Narrative · Political science · Public relations · Qualitative research · Social science · Sociology · Storytelling · The Internet · World Wide Web · Computer Science · Focus Groups and Qualitative Methods · Medicine · Psychology · Social Psychology

• The Ethics of Using the Internet to Collect Qualitative Research Data

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• Public Claims about Automatic External Defibrillators

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• Contenu et utilité d’un forum de discussion sur Internet destiné aux parents d’enfants autistes

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• Encountering Distressing Information in Online Research

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• Having their say

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• The terrorist in my home’

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• Learning and innovation in network

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• Communities of resistance’ and the use of newspaper discussion boards

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• An Alternative Method of Interviewing

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• Benefits of Participating in Internet Interviews

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• Ethical Issues in the Documentary Data Analysis of Internet Posts and Archives

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• The Internet as a Source of Data to Support the Development of a Quality-of-Life Measure for Eating Disorders

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• Interviews and Internet Forums

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• Unsolicited Narratives from the Internet

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• Skype as a Tool for Qualitative Research Interviews

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