Nothing about us, without us
Conducting participatory action research among and with persons with disabilities in humanitarian settings
Dados Bibliográficos
| ID | 6134670 |
|---|---|
| Autores | Mihoko Tanabe (0000-0002-9898-9317, Women's Refugee Commission, autor correspondente), Emma Pearce (0000-0001-7608-0033, Women's Refugee Commission), Sandra K Krause (Women's Refugee Commission), Sandra Krause (0000-0001-8415-1970, Women's Refugee Commission) |
| Ano | 2017 |
| Volume | 16 |
| Fascículo | 3 |
| Páginas | 280-298 |
| Data de publicação | 2017-02-14 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Action Research (JOURNAL) |
| Identificadores do periódico | ISSN: 1476-7503 • E-ISSN: 1741-2617 |
| Editora | SAGE Publishing (PUBLISHER • US) |
| DOI | 10.1177/1476750316685878 |
| OpenAlex | W2588173901 |
| Idioma | EN |
| Citações recebidas | 15 |
| Referências citadas | 16 |
Standard approaches to data collection can present challenges to persons with disabilities participating in research processes. The Women's Refugee Commission applied a participatory model to examine the intersections of sexual and reproductive health and disability in Kenya, Nepal, and Uganda. Respecting the Convention on the Rights of Persons with Disabilities and a rights-based framework to research, the study engaged a variety of stakeholders—including organizations of persons with disabilities—from its inception and design, through to implementation and recommendation formulation. In Nepal especially, persons with disabilities played a central role in gathering the information from refugee women, men, and adolescents with physical, intellectual, sensory, and psychosocial impairments. Reasonable accommodations for the data collectors included the provision of personal assistants, vehicles for movement, sign language interpretation, Braille documents, and tactile ink-based diagrams; use of a “talking pen;” and creation of a “supporter” role in the facilitation process. Daily debriefings provided opportunities for collective improvement and reflection. The study offers considerations for other researchers to extend their research—on the part of the study participants and in the research process itself—to operationalize a rights-based, inclusive, and empowering approach to qualitative research
Action research · Braille · Convention · Convention on the Rights of Persons with Disabilities · Inclusion (mineral · Medical education · Operationalization · Participatory action research · Pedagogy · Political science · Psychosocial · Public relations · Qualitative research · Refugee · Social science · Sociology · Children's Rights and Participation · Disability Rights and Representation · Law · Medicine · Migration, Health and Trauma · Psychology · Social Psychology
Undergraduate Disabled Students as Knowledge Producers Including Researchers
A chair at the table
Key issues for participatory research in the design and implementation of humanitarian assistance
Describing adolescents with disabilities’ experiences of Covid-19 and other humanitarian emergencies in low- and middle-income countries
Empowered voices
Community Inclusion for People with Intellectual and Developmental Disabilities
Towards meaningful participation in humanitarian studies
Empowering Workers and Learners through a Combined Participatory Action Research and Research Justice Approach
Contextualising the experiences of women with disabilities in Nepal
Participatory action research in partnership with young people with disability
The Life Journeys of Adults with Intellectual and Developmental Disabilities
Producing and Embodying the Humanitarian Border
Ethical navigations in participatory action research with students
We Have a Ways to Go, but I Think You've Taken the Steps to Get Us There
Participatory action research in neoliberal academia
Conceptualizing Inclusive Research with People with Intellectual Disability
Predictors of voluntary HIV counselling and testing services utilization among people with disabilities in Addis Ababa, Ethiopia
W-Dare
Fostering disability-inclusive HIV/Aids programs in northeast India
How Zulu-speaking youth with physical and visual disabilities understand love and relationships in constructing their sexual identities
Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships
Paradigm Shifts in Disability and Health
Addressing Health Disparities Through Promoting Equity for Individuals with Intellectual Disability
Theory and method
Access to health care, reproductive health and disability
Disability, space and sexuality
Challenging Barriers to Participation in Qualitative Research
| Obras citantes distintas | 15 |
|---|---|
| Citações por ano | 2,5 |
| Intervalo de citações | 2020 - 2026 (7) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 15 |