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Whose Responsibility Is It to Dismantle Medical Mistrust? Future Directions for Researchers and Health Care Providers

Dados Bibliográficos

ID8107565
AutoresJessica Jaiswal (0000-0002-4880-0205, University of Alabama, autor correspondente)
Ano2019
Volume45
Fascículo2
Páginas188-196
Data de publicação2019-04-03
Peer ReviewedSim
Open AccessNão
TipoARTICLE
PeriódicoBehavioral Medicine (JOURNAL)
Identificadores do periódicoISSN: 0896-4289 • E-ISSN: 1940-4026
EditoraTaylor & Francis (PUBLISHER • GB)
DOI10.1080/08964289.2019.1630357
PMID31343959
OpenAlexW2963858966
IdiomaEN
Citações recebidas55
Referências citadas48

Medical mistrust persists and appears to be growing. The public health literature on medical mistrust has largely focused on mistrust among Black and African American populations due to legacies of abuse and mistreatment, such as the infamous Tuskegee Syphilis Study. However, research is now emerging that explores mistrust among various populations and in varying contexts, and the literature now largely emphasizes the role of ongoing, present-day social and economic inequalities in shaping and sustaining mistrust, particularly among populations who experience staggering health disparities. This special issue showcased nine articles exploring medical mistrust among diverse populations, exploring a wide array of topics and spanning myriad methodologies. In addition to a rigorous systematic review of the literature, this issue covers several critical subareas of the health disparities literature, including preventative health screenings among Black men, discrimination and cultural factors among rural Latinx communities, health care satisfaction among Latina immigrant women, the complex relationship between HIV testing and "conspiracy beliefs" among Black populations, pre-exposure prophylaxis use among transgender women, the impacts of mass incarceration on HIV care, eHealth interventions to address chronic diseases among sexual minority men of color, and participatory research to engage underserved populations as co-researchers. The purpose of this article is to provide a brief summary of the nine manuscripts in this special issue and to outline some recommendations and future directions for research on medical mistrust

Criminology · Health care · Health equity · Participatory action research · Political science · Psychological intervention · Public health · Sociology · Transgender · Food Security and Health in Diverse Populations · Medicine · Nursing · Obesity and Health Practices · Psychology · Racial and Ethnic Identity Research · Gender Studies · Gerontology

  • The Role of Depression on Medical Mistrust and Mental Health Service Use in Black Adults

    Open Access•Aderonke Bamgbose Pederson, Alya Azman et al.•Community Mental Health Journal•2026

  • Researchers are not blank slates

    Open Access•Gabriela Alvarado, Molly Waymouth et al.•International Journal of Social…•2026

  • Associations Between Healthcare Discrimination, Medical Mistrust, and Covid-19 Vaccine Uptake Among Young Black Adults in the Southern United States

    Open Access•Ibrahim Yigit, Alejandro Báez et al.•Journal of Racial and Ethnic…•2026

  • Trust strategies in healthcare

    Open Access•Cole Etherington, Samantha B Meyer et al.•Social Science & Medicine•2026

  • Public health communication during the Covid-19 health crisis

    Open Access•Phrashiah Githinji, Alexandra L MacMillan Uribe et al.•Humanities and Social Sciences…•2024

  • Świadomość, możliwości i bariery w poradnictwie genetycznym w kierunku mutacji BRCA oferowanym Afroamerykankom i Latynoskom

    Open Access•Sylwia Michałowska•Kultura-Społeczeństwo-Edukacja•2022

  • Trust in healthcare and perceived discrimination in Sweden

    Open Access•Maria Wemrell, Mariam Hassan et al.•Frontiers in Public Health•2025

  • Where country roads take us

    Open Access•Brittany “brie” Haupt, Michael O'Grady•International Journal of Disaster…•2024

  • Promoting Men’s Health Equity

    Open Access•Derek M Griffith•American Journal of Men s Health•2020

  • Engaging Latino Families About Covid-19 Vaccines

    Open Access•J Garcia, Nancy Vargas et al.•Health Education & Behavior•2021

  • HIV Testing Barriers Among Black and Latina Women

    Sarah Tonkin, Constanza De Dios et al.•Substance Use & Misuse•2025

  • The Roles of Social Media Use and Medical Mistrust in Black Americans’ Covid-19 Vaccine Hesitancy

    Soya Nah, Lillie D Williamson et al.•Health Communication•2024

  • Key Storytellers of Health Information Among Spanish-Speaking Latino Sexual Minority Men in the U.S

    J Lee, Kathleen Agudelo Paipilla et al.•Health Communication•2026

  • Self-reported anxiety and depression problems and suicide ideation among black and latinx adults and the moderating role of social support

    Open Access•Sharifa Z Williams, Crystal Fuller Lewis et al.•Journal of Community Health•2022

  • Validation of a Modified Group-Based Medical Mistrust Scale Among Young Latinx Adults in the United States

    Open Access•Daniel F López-Cevallos, S Marie Harvey•Journal of Community Health•2024

  • To Whom Do These Results Apply? Assessing Evidence for the Generalizability of Social and Emotional Learning Programs Among Specific Racial and Ethnic Groups

    Open Access•Tiffany M Jones, Bo‐Kyung Elizabeth Kim et al.•Review of Educational Research•2026

  • Incarceration history and opioid use among adults living with HIV and chronic pain

    Open Access•Anna B Lichtiger, Yuting Deng et al.•Health & Justice•2024

  • Community‐Based Organizations as Trusted Messengers in Health

    Open Access•Michelle M Chau, Naheed Ahmed et al.•The Hastings Center Report•2023

  • Trust in American Medicine

    Open Access•Dinushika Mohottige, L Ebony Boulware•The Hastings Center Report•2020

  • Medical Mistrust, Discrimination, and the Domestic HIV Epidemic

    Open Access•Laura M Bogart, Takada et al.•HIV in US Communities of Color•2021

  • The role of medical mistrust in racial and ethnic inequities in postpartum mental health care

    Open Access•Sarah C Haight, Jamie R Daw et al.•SSM - Mental Health•2026

  • Inclusive Fertility

    Open Access•Olivia G Anderson, Michaela Taylor et al.•Journal of Racial and Ethnic…•2026

  • Black Emerging Adult Preventive Care

    Open Access•Ashley Wynn, Kristina B Hood•Journal of Black Psychology•2025

  • An Investigation of Associations Between Race, Ethnicity, and Past Experiences of Discrimination with Medical Mistrust and Covid-19 Protective Strategies

    Open Access•Andrea C Smith, Jacqueline Woerner et al.•Journal of Racial and Ethnic…•2021

  • Factors Influencing Successful Recruitment of Racial and Ethnic Minority Patients for an Observational HIV Cohort Study in Washington, DC

    Open Access•Maria Jaurretche, Mark Levy et al.•Journal of Racial and Ethnic…•2022

  • Patient-Provider Race Concordance and Medication Adherence

    Open Access•Ava J Fabian, Roberto L Balado et al.•Journal of Racial and Ethnic…•2026

  • Understanding Medical Distrust Among African American/Black and Latino Persons Living With HIV With Sub-Optimal Engagement Along the HIV Care Continuum

    Open Access•Ning He, Charles M Cleland et al.•SAGE Open•2021

  • The Role of Boundary Spanning in Building Trust

    Open Access•Lara Bianchi, Mihaela Kelemen et al.•Sociology of Health & Illness•2025

  • What Should Students Learn About the Importance of Cultural Brokering in Immigrant Communities

    Open Access•J Lee, Gustavo Robles et al.•The AMA Journal of Ethic•2023

  • Beyond Knowledge

    Open Access•Toluwani E Adekunle, Tiwaladeoluwa B Adekunle et al.•Journal of Immigrant and Minority…•2025

  • Human Papillomavirus Vaccine Acceptance (HPV-VA) and Vaccine Uptake (HPV-VU)

    Open Access•Gabriel Frietze, Margie E Padilla et al.•BMC Public Health•2023

  • Disinformation, Misinformation and Inequality-Driven Mistrust in the Time of Covid-19

    Open Access•Jessica Jaiswal, Caleb LoSchiavo et al.•AIDS and Behavior•2020

  • Race-Based Medical Mistrust, HIV-Related Stigma, and ART Adherence in a Diverse Sample of Men Who Have Sex with Men with HIV

    Open Access•Stephanie A Meyers‐Pantele, Stephanie A Meyers-Pantele et al.•AIDS and Behavior•2021

  • Engaging Diverse African American/Black and Latine Youth and Emerging Adults Living with HIV into Research

    Open Access•S Serrano, Leo Wilton et al.•AIDS and Behavior•2024

  • PrEP-Related Medical, Structural and Institutional Mistrust among a Socioeconomically Diverse Sample of Black, Latine, Asian, and White Young Sexual Minority Men

    Open Access•Jessica Jaiswal, Marybec Griffin et al.•AIDS and Behavior•2025

  • HIV Prevention Among Cisgender Men Who have Sex with Transgender Women

    Open Access•Tonia Poteat, Erin Cooney et al.•AIDS and Behavior•2021

  • Long-Acting Injectable Therapy for People with HIV

    Open Access•Gabriel G Edwards, Ayako Miyashita-Ochoa et al.•AIDS and Behavior•2022

  • Sexual Minority Women and Discriminatory Health Care Experiences

    Open Access•Shelby B Scott, Karie A Gaska et al.•Women s Health Issues•2022

  • Interest in and Support for Alternative Models of Medication Abortion Provision Among Patients Seeking Abortion in the United States

    Open Access•Natalie Morris, M Antonia Biggs et al.•Women s Health Issues•2024

  • Testing Vicarious Experiences as Antecedents of Medical Mistrust

    Lillie D Williamson•Behavioral Medicine•2021

  • Medical Mistrust Among Food Insecure Individuals in Appalachia

    Open Access•Mélissa Thomas, Melissa K Thomas et al.•Family & Community Health•2023

  • Reproductive Justice for young Black women aging out of foster care

    Sara Matsuzaka, Colleen C Katz et al.•Journal of Public Child Welfare•2023

  • Disparities in PrEP Eligibility and Uptake at the Intersection of Sexual Identity and Behavior

    Open Access•G Phillips, Casey D Xavier Hall et al.•Sexuality Research and Social…•2023

  • Qualitative assessment of attitudes toward cervical cancer (CC) screening and HPV self-sampling among African American (AA) and Sub Saharan African Immigrant (SAI) women

    Adebola Adegboyega, Adeyimika Titilayo Desmennu et al.•Ethnicity and Health•2021

  • Spatial barriers as moral failings

    Open Access•Michele Statz, Kaylie Evers•Health & Place•2020

  • Understanding Latino Political Engagement and Activity on Social Media

    Open Access•M Abrajano, M O Garcia et al.•Political Research Quarterly•2025

  • The racial and cultural ecology of home and community-based services for diverse older adults

    Open Access•J M Ezell, Iman Alsmadi et al.•Journal of Aging Studies•2022

  • Strategies for engaging Black male caregivers in family-based research

    Open Access•Natasha Crooks, Latrice Yates et al.•Children and Youth Services Review•2024

  • A new public health psychology to mend the chasm between public health and clinical care

    Perry N Halkitis•American Psychologist•2020

  • Why Would I Go Back There

    Open Access•Amber B Vayo•Law & Policy•2025

  • Unpacking Contemporary Racism in Healthcare

    Open Access•Lindsay Beaman, Regan Gurung•Race and Social Problems•2025

  • Linking racism and homonegativity to healthcare system distrust among young men of color who have sex with men

    Open Access•Loretta Hsueh, Eric K Layland et al.•Social Science & Medicine•2021

  • Trajectories of immigrant workers with work-related injuries

    Open Access•Maude Arsenault, Bob W White et al.•Social Science & Medicine•2025

  • Our Voices Will Get Louder

    Open Access•Siwaar Abouhala, Aber Abdulle et al.•Journal of Racial and Ethnic…•2024

  • Influence of Medical Mistrust on Prevention Behavior and Decision-Making Among Minoritized Youth and Young Adults During the Covid-19 Pandemic

    Open Access•G Phillips, Jiayi Xu et al.•Journal of Racial and Ethnic…•2024

  • A systematic review of medical mistrust measures

    Open Access•Lillie D Williamson, Cabral A Bigman•Patient Education and Counseling•2018

  • Are HIV/Aids Conspiracy Beliefs a Barrier to HIV Prevention Among African Americans?

    Laura M Bogart, Sheryl Thorburn•JAIDS Journal of Acquired Immune…•2005

  • Attitudes about Racism, Medical Mistrust, and Satisfaction with Care among African American and White Cardiac Patients

    Open Access•Thomas A Laveist, Kim J Nickerson et al.•Medical Care Research and Review•2000

  • Mistrust of Health Care Organizations Is Associated with Underutilization of Health Services

    Open Access•Thomas A Laveist, Lydia A Isaac et al.•Health Services Research•2009

  • A Legacy of Distrust

    Open Access•Vanessa Northington Gamble•American Journal of Preventive…•1993

  • The Group-Based Medical Mistrust Scale

    Open Access•Hayley Thompson, Hayley S Thompson et al.•Preventive Medicine•2004

  • A Qualitative Study of Medical Mistrust, Perceived Discrimination, and Risk Behavior Disclosure to Clinicians by U.S. Male Sex Workers and Other Men Who Have Sex with Men

    Open Access•K Underhill, Kathleen M Morrow et al.•Journal of Urban Health•2015

  • Medical mistrust and patient satisfaction with mammography

    Open Access•Yamile Molina, Sage Kim et al.•Health Expectations•2015

  • Stigma, medical mistrust, and perceived racism may affect PrEP awareness and uptake in black compared to white gay and bisexual men in Jackson, Mississippi and Boston, Massachusetts

    Sean Cahill, S Wade Taylor et al.•AIDS Care•2017

  • Longitudinal Association of HIV Conspiracy Beliefs with Sexual Risk Among Black Males Living with HIV

    Open Access•Laura M Bogart, Frank H Galván et al.•AIDS and Behavior•2010

  • The Health and Sociocultural Correlates of Aids Genocidal Beliefs and Medical Mistrust Among African American MSM

    Open Access•K G Quinn, Jeffrey A Kelly et al.•AIDS and Behavior•2016

  • Stigma and Conspiracy Beliefs Related to Pre-exposure Prophylaxis (PrEP) and Interest in Using PrEP Among Black and White Men and Transgender Women Who Have Sex with Men

    Open Access•Lisa A Eaton, Seth C Kalichman et al.•AIDS and Behavior•2017

  • HIV-related ‘conspiracy beliefs’

    Jessica Jaiswal, Stuart N Singer et al.•Culture Health & Sexuality•2019

  • Race, Medical Mistrust, and Segregation in Primary Care as Usual Source of Care

    Open Access•Miles J Arnett, Roland J Thorpe et al.•Journal of Urban Health•2016

  • The Role of Stigma and Medical Mistrust in the Routine Health Care Engagement of Black Men Who Have Sex With Men

    Lisa A Eaton, Daniel D Driffin et al.•American Journal of Public Health•2015

  • Special issue on Latino physical health

    Open Access•John M Ruiz, John Ruiz et al.•Journal of Latina/o Psychology•2016

  • Racial and Ethnic Discrimination, Medical Mistrust, and Satisfaction with Birth Control Services among Young Adult Latinas

    Open Access•Lisa P Oakley, Marie Harvey et al.•Women s Health Issues•2018

  • Medical Mistrust, Perceived Discrimination, and Satisfaction With Health Care Among Young‐Adult Rural Latinos

    Open Access•Daniel F López-Cevallos, Daniel F López‐Cevallos et al.•The Journal of Rural Health•2014

  • Psychosocial Correlates of Medical Mistrust Among African American Men

    Open Access•Wizdom Powell Hammond, Wizdom Powell•American Journal of Community…•2010

  • Rumors and Realities

    Jacob Heller•American Journal of Public Health•2014

  • Medication beliefs mediate the association between medical mistrust and antiretroviral adherence among African Americans living with HIV/Aids

    Open Access•Seth C Kalichman, Lisa A Eaton et al.•Journal of Health Psychology•2017

  • The need for multi-level mitigation of medical mistrust among social network members contributing to antiretroviral treatment nonadherence in African Americans living with HIV

    Open Access•Leah M Adams, Jane M Simoni•Social Science & Medicine•2016

  • Medical mistrust among social network members may contribute to antiretroviral treatment nonadherence in African Americans living with HIV

    Open Access•Laura M Bogart, Glenn J Wagner et al.•Social Science & Medicine•2016

  • State-level immigration and immigrant-focused policies as drivers of Latino health disparities in the United States

    Open Access•Morgan M Philbin, Morgan Flake et al.•Social Science & Medicine•2018

  • Medical mistrust is related to lower longitudinal medication adherence among African-American males with HIV

    Open Access•Sannisha K Dale, Laura M Bogart et al.•Journal of Health Psychology•2016

  • Policing immigrant communities

    Nik Theodore, Robert Habans•New Community•2016

  • Conspiracy Beliefs Are Not Necessarily a Barrier to Engagement in HIV Care Among Urban, Low-Income People of Color Living with HIV

    Open Access•Jessica Jaiswal, N Singer et al.•Journal of Racial and Ethnic…•2018

  • Human Papillomavirus Vaccine Knowledge and Attitudes, Preventative Health Behaviors, and Medical Mistrust Among a Racially and Ethnically Diverse Sample of College Women

    Open Access•Stephanie Kolar, Stephanie K Kolar et al.•Journal of Racial and Ethnic…•2015

Obras citantes distintas55
Citações por ano9,17
Intervalo de citações2020 - 2026 (7)
Velocidade de citaçãocurrent
Altamente citadoNão
Tipos de citaçãoNeutras: 53
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