Measurement of Quality of Well Being in a Child and Adolescent Cystic Fibrosis Population

CZYZEWSKI, DANITA I. PHD; MARIOTTO, MARCO J. PHD; Bartholomew, L. Kay EDD; LECOMPTE, STEPHANIE H. BS; SOCKRIDER, MARIANNA M. MD Author Information

Child Well-Being · Cystic fibrosis · Developmental psychology · Environmental health · Family medicine · Population · Quality (philosophy) · Childhood Cancer Survivors' Quality of Life · Cystic Fibrosis Research Advances · Family Support in Illness · Internal Medicine · Medicine · Philosophy · Psychology · Gerontology · Pediatrics

• Quality of life bibliography and indexes

  Open Access•R Berzon, R A Berzon et al.•Quality of Life Research•1995

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• Can parents rate their child's health-related quality of life? Results of a systematic review

  Open Access•Christine Eiser, Rachel Morse•Quality of Life Research•2001

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• Parenting Stress Among Caregivers of Children With Chronic Illness

  M K Cousino, R A Hazen•Journal of Pediatric Psychology•2013

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• The PedsQLTM in pediatric cancer

  Open Access•James W Varni, Tasha M Burwinkle et al.•Cancer•2002

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• The adaptations of a quality of life questionnaire for routine use in clinical practice

  Open Access•Judy Bradley, Martin Dempster et al.•Quality of Life Research•1999

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• Development of the Cystic Fibrosis Questionnaire (CFQ) for assessing quality of life in pediatric and adult patients

  Open Access•Bernadette Henry, Pierre Aussage et al.•Quality of Life Research•2003

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• Which source should we use to measure quality of life in children with asthma

  Open Access•Elise M le Coq, A J P Boeke et al.•Quality of Life Research•2000

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• The revised German Cystic Fibrosis Questionnaire

  Open Access•Kerstin Wenninger, Pierre Aussage et al.•Quality of Life Research•2003

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• Quality of life as conveyed by pediatric patients with cancer

  Open Access•Pamela S Hinds, Jami S Gattuso et al.•Quality of Life Research•2004

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• Parent-proxy and child self-reported health-related quality of life

  Open Access•Elise Davis, Caroline Nicolas et al.•Quality of Life Research•2007

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• Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer

  Open Access•Susan K Parsons, Diane L Fairclough et al.•Quality of Life Research•2011

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• Quality of life in pre-adolescence

  Open Access•Marjo Apajasalo, J Rautonen et al.•Quality of Life Research•1996

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• Quality of life in early adolescence

  Open Access•Marjo Apajasalo, Harri Sintonen et al.•Quality of Life Research•1996

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• PedsQLTM 4.0

  James W Varni, Michael Seid et al.•Medical Care•2001

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• The PedsQLTM

  James W Varni, Michael Seid et al.•Medical Care•1999

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• The Gap Concept as a Quality of Life Measure

  Open Access•Anne-Marie Etienne, Gilles Dupuis et al.•Social Indicators Research•2011

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• Comparisons of Five Health Status Instruments for Orthopedic Evaluation

  Matthew H Liang, Anne H Fossel et al.•Medical Care•1990

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• The Quality of Well-Being Scale

  Robert M Kaplan, John P Anderson et al.•Medical Care•1989

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