Patient-reported Outcomes (PROs)

Putting the Patient Perspective in Patient-centered Outcomes Research

Dados Bibliográficos

ID9101092
AutoresClaire Snyder (0000-0001-8952-4561, Johns Hopkins University, autor correspondente), Claire F Snyder, Roxanne E Jensen (0000-0002-4632-1091, Georgetown University Medical Center), Jodi B Segal (0000-0003-3978-9662, Johns Hopkins University, autor correspondente), Albert W Wu (0000-0001-6189-7120, Johns Hopkins University)
Ano2013
Volume51
FascículoSupplement 8Suppl 3
PáginasS73-S79
Data de publicação2013-08-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoMedical Care (JOURNAL)
Identificadores do periódicoISSN: 0025-7079 • E-ISSN: 1537-1948
EditoraOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/mlr.0b013e31829b1d84
PMID23774513
PMCIDPMC3771694
OpenAlexW1972376862
IdiomaEN
Citações recebidas18
Referências citadas18

Patient-centered outcomes research (PCOR) aims to improve care quality and patient outcomes by providing information that patients, clinicians, and family members need regarding treatment alternatives, and emphasizing patient input to inform the research process. PCOR capitalizes on available data sources and generates new evidence to provide timely and relevant information and can be conducted using prospective data collection, disease registries, electronic medical records, aggregated results from prior research, and administrative claims. Given PCOR's emphasis on the patient perspective, methods to incorporate patient-reported outcomes (PROs) are critical. PROs are defined by the US Food and Drug Administration as "Any report coming directly from patients... about a health condition and its treatment." However, PROs have not routinely been collected in a way that facilitates their use in PCOR. Electronic medical records, disease registries, and administrative data have only rarely collected, or been linked to, PROs. Recent technological developments facilitate the electronic collection of PROs and linkage of PRO data, offering new opportunities for putting the patient perspective in PCOR. This paper describes the importance of and methods for using PROs for PCOR. We (1) define PROs; (2) identify how PROs can be used in PCOR and the critical role of electronic data methods for facilitating the use of PRO data in PCOR; (3) outline the challenges and key unanswered questions that need to be addressed for the routine use of PROs in PCOR; and (4) discuss policy and research interventions to accelerate the integration of PROs with clinical data

Alternative medicine · Data collection · Data science · MEDLINE · Outcomes research · Patient-centered outcomes · Perspective (graphical) · Political science · Psychological intervention · Chronic Disease Management Strategies · Computer Science · Family Support in Illness · Health Systems, Economic Evaluations, Quality of Life · Medicine · Nursing