Network Engagement in Action

Stakeholder Engagement Activities to Enhance Patient-centeredness of Research

Dados Bibliográficos

ID9101799
AutoresJennifer M Poger (Penn State College of Medicine), Jennifer Poger (0000-0003-3276-805X, Penn State Milton S. Hershey Medical Center, autor correspondente), Victoria Mayer (0000-0001-9993-2745, Department of Population Health Science and Policy), O Kenrik Duru (0000-0001-8825-9460, University of California, Los Angeles), Beth Nauman (Health Services Research, Louisiana Public Health Institute, New Orleans, LA), Heather Holderness (0000-0003-3915-8510, Department of Family Medicine, Oregon Health and Science University), Nate Warren (OCHIN Inc., Portland, OR), Carolina Vásquez (UCLA Division of General Internal Medicine and Health Services Research, Los Angeles, CA, autor correspondente), Salma Bibi (0009-0004-7799-3204, Center for HealthCare Organizational and Innovation Research (CHOIR), School of Public Health, University of California, Berkeley, Berkeley, CA), Laura J Rasmussen-Torvik (Northwestern University), Laura J Rasmussen‐Torvik (0000-0002-0820-7300, Icahn School of Medicine at Mount Sinai), Zahra Hosseinian (0000-0002-0136-5277, Center for Health Information Partnerships (CHIP), Northwestern University Feinberg School of Medicine, Chicago, IL), Lizheng Shi (0000-0002-7827-6766, Tulane University), Jamie Wallace (0000-0002-2982-4965, Department of Population Medicine, Division of Health Policy and Insurance Research, Harvard Pilgrim Health Care Institute, Boston, MA), Crispin N Goytia (Icahn School of Medicine at Mount Sinai), Crispin Goytia (Ochin), Carol R Horowitz (0000-0003-1517-4700, Health Policy and Medicine, Icahn School of Medicine at Mount Sinai New York, NY, autor correspondente), Jennifer L Kraschnewski (0000-0003-0998-1346, Department of Medicine and Public Health Sciences, Penn State Clinical and Translational Science Institute, Penn State Health Milton S. Hershey Medical Center, Hershey, PA)
Ano2020
Volume58
PáginasS66-S74
Data de publicação2020-06-01
Peer ReviewedSim
Open AccessNão
TipoARTICLE
PeriódicoMedical Care (JOURNAL)
Identificadores do periódicoISSN: 0025-7079 • E-ISSN: 1537-1948
EditoraOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/mlr.0000000000001264
PMID32412955
OpenAlexW3024959221
IdiomaEN
Citações recebidas2
Referências citadas31

BACKGROUND: Stakeholders (ie, patients, policymakers, clinicians, advocacy groups, health system leaders, payers, and others) offer critical input at various stages in the research continuum, and their contributions are increasingly recognized as an important component of effective translational research. Natural experiments, in particular, may benefit from stakeholder feedback in addressing real-world issues and providing insight into future policy decisions, though best practices for the engagement of stakeholders in observational studies are limited in the literature. METHODS: The Natural Experiments for Translation in Diabetes 2.0 (NEXT-D2) network utilizes rigorous methods to evaluate natural experiments in health policy and program delivery with a focus on diabetes-related outcomes. Each of the 8 partnering institutions incorporates stakeholder engagement throughout multiple study phases to enhance the patient-centeredness of results. NEXT-D2 dedicates a committee to Engagement for resource sharing, enhancing engagement approaches, and advancing network-wide engagement activities. Key stakeholder engagement activities include Study Meetings, Proposal Development, Trainings & Educational Opportunities, Data Analysis, and Results Dissemination. Network-wide patient-centered resources and multimedia have also been developed through the broad expertise of each site's stakeholder group. CONCLUSIONS: This collaboration has created a continuous feedback loop wherein site-level engagement approaches are informed via the network and network-level engagement efforts are shaped by individual sites. Emerging best practices include: incorporating stakeholders in multiple ways throughout the research, building on previous relationships with stakeholders, enhancing capacity through stakeholder and investigator training, involving stakeholders in refining outcome choices and understanding the meaning of variables, and recognizing the power of stakeholders in maximizing dissemination

Business · Knowledge management · Knowledge translation · Political science · Public relations · Stakeholder · Stakeholder analysis · Stakeholder engagement · Computer Science · Diabetes Management and Education · Health Policy Implementation Science · Mental Health and Patient Involvement · Psychology