Asian Carers' Experiences of Medical and Social Care
The Case of Cerebral Palsy
Bibliographic Data
| ID | 10895384 |
|---|---|
| Authors | Ghazala Mir (0000-0002-5277-6885, Leeds Community Healthcare NHS Trust, corresponding author) |
| Year | 2003 |
| Volume | 33 |
| Issue | 4 |
| Pages | 465-479 |
| Publication date | 2003-06-01 |
| Open Access | No |
| Type | ARTICLE |
| Venue | The British Journal of Social Work (JOURNAL) |
| Journal identifiers | ISSN: 0045-3102 • E-ISSN: 1468-263X |
| Publisher | Oxford University Press (PUBLISHER • GB) |
| DOI | 10.1093/bjsw/33.4.465 |
| OpenAlex | W1984533434 |
| Language | EN |
| Citations received | 7 |
| References cited | 5 |
This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in‐depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty. We conclude that developments in service provision need to build on the perspectives of South Asian individuals and communities to respond effectively to their needs.
Business · Causation · Cerebral palsy · Constructive · Developmental psychology · Perspective (graphical) · Political science · Psychiatry · Service (business) · Cerebral Palsy and Movement Disorders · Family and Disability Support Research · Infant Development and Preterm Care · Medicine · Nursing · Psychology
Culture and context
What really annoys me is people take it like it's a disability’, epilepsy, disability and identity among people of Pakistani origin living in the UK
Disability and identity
Do they look after their own? Informal support for South Asian carers
Addressing Ethnicity in Social Care Research
Micro‐provision of Social Care Support for Marginalized Communities – Filling the Gap or Building Bridges to the Mainstream
Listening to the Margins
Supporting Asian Deaf Young People and their Families
Family care-giving and chronic illness
Informal Carers of Adolescents and Adults with Learning Difficulties from the South Asian Communities
Perceptions of disability of persons with cerebral palsy, their close relatives and able bodied persons
Attitudes towards disabilities in a multicultural society
| Citations per year | 0.32 |
|---|---|
| Citation span | 2004 - 2023 (20) |
| Highly cited | No |