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Exploring the Views of Mothers of Children Diagnosed with Developmental Disabilities

A Qualitative Investigation into Social Participation and Support Perceptions in Türkiye

Bibliographic Data

ID10898262
AuthorsMustafa Rfat (0000-0003-0212-4552, Social Work, Brown School, Washington University in St. Louis , St Louis, MO 63130, USA, corresponding author), Emine Ilme (0000-0002-0286-916X, Ümraniye Yeşilay Danışmanlık Merkezi, Tantavi Mahallesi , Ümraniye/İstanbul, Turkiye), Deniz Namik (The University of Illinois at Chicago College of Dentistry , Chicago, IL 60612, USA), Orhan Koçak (0000-0002-0281-8805, Social Work Department at Istanbul University Cerrahpasa , Büyükçekmece/Istanbul, Turkiye)
Year2024
Volume54
Issue4
Pages1574-1592
Publication date2024-06-26
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueThe British Journal of Social Work (JOURNAL)
Journal identifiersISSN: 0045-3102 • E-ISSN: 1468-263X
PublisherOxford University Press (PUBLISHER • GB)
DOI10.1093/bjsw/bcad256
OpenAlexW4389776279
LanguageEN
Citations received1
References cited25

In Türkiye, care for children with disabilities is performed predominantly by mothers, but they lack support from social services and close family, which exacerbates their challenges. This study examines social participation, social relations and perceptions of social support of mothers of children with developmental disabilities (MCDDs) from a social work perspective. A qualitative research method was used to understand MCDDs’ needs. The research population consisted of ten mothers living in Beyoğlu, a district of Istanbul. The data were obtained through semistructured, face-to-face, in-depth interviews. The themes were determined and explored using descriptive analysis. The study revealed that MCDDs bear the responsibility for their children's care with limited support from close family members. As a result, MCDDs face severe social isolation and mental health issues and have uncertain futures due to the inability to work or attend school. Moving forward, the situation of MCDDs requires intervention at the micro-, mezzo- and macrolevels to improve the overall well-being of mothers. The social work profession should intervene and assist mothers in accessing needed programmes and services

Developmental psychology · Face (sociological concept) · Futures contract · Intervention (counseling) · Perception · Political science · Population · Psychiatry · Qualitative research · Social science · Social support · Sociology · Family and Disability Support Research · Medicine · Nursing · Parental Involvement in Education · Psychology · Social Psychology · Social Work Education and Practice · Social Work

  • Psychosocial and caregiving challenges of mothers of children with disabilities in Iran

    Open Access•Hamid Abredari, Mahmood Karimy et al.•BMC Psychology•2025

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    Gloria Y K Ma, Gloria Yuet Kwan et al.•American Journal of Orthopsychiatry•2016

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    Open Access•Reyhan Atasü-Topcuoğlu•New Perspectives on Turkey•2022

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Unique citing works1
Citations per year1
Citation span2025 - 2025 (1)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 1

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