I just want to stay here and sleep forever”
South African patients’ lived experiences of chronic fatigue in endometriosis
Bibliographic Data
| ID | 11012586 |
|---|---|
| Authors | Alexandra Spyrelis (0000-0001-7719-5414, Stellenbosch University, corresponding author), Zamafiso Nombulelo Sibande (Stellenbosch University), Maria E Loades (0000-0002-0839-3190, University of Bath), Rizwana Roomaney (0000-0002-3585-4992, Stellenbosch University) |
| Year | 2024 |
| Volume | 54 |
| Issue | 1 |
| Pages | 23-34 |
| Publication date | 2024-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | South African Journal of Psychology (JOURNAL) |
| Journal identifiers | ISSN: 0081-2463 • E-ISSN: 2078-208X |
| Publisher | SAGE Publications (PUBLISHER • US) |
| DOI | 10.1177/00812463241227319 |
| OpenAlex | W4391229720 |
| Language | EN |
| References cited | 32 |
Chronic fatigue is a distressing symptom for endometriosis patients but is not widely investigated in the literature. Our aim was to explore patients’ lived experiences of chronic fatigue and how they make meaning of it. We analysed a subset of data from seven severely fatigued endometriosis patients, drawn from a broader qualitative study in South Africa, using an interpretive phenomenological analysis. Three superordinate themes and eight subordinate themes were developed. The three superordinate themes were powerlessness, which was a core aspect of the chronic fatigue experience among participants; struggle and anguish, as their lives had become a daily struggle resulting in feelings of despair and anger; and otherness, as they felt different from their peers due to the fatigue. The findings demonstrate the far-reaching effects that chronic fatigue has in the lives of endometriosis patients, including on their self-perception, and highlights the critical need for fatigue management strategies within treatment protocols
Chronic fatigue · Chronic fatigue syndrome · Endometriosis · Gynecology · Lived experience · Physical therapy · Psychiatry · Psychotherapist · Sleep (system call) · Clinical Psychology · Endometriosis Research and Treatment · Medicine · Pregnancy-related medical research · Psychology · Gerontology
Phenomenology of Illness
Phenomenology of Perception
Interpretative phenomenological analysis as a useful methodology for research on the lived experience of pain
A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology
Contribution of Chronic Fatigue to Psychosocial Status and Quality of Life in Spanish Women Diagnosed with Endometriosis
Chronic Fatigue, Physical Impairments and Quality of Life in Women with Endometriosis
Interpretative Phenomenological Analysis (IPA)
Analytical Pluralism in Qualitative Research
The most lonely condition I can imagine”
Fatigue-management strategies among women with endometriosis in South Africa
The Mindful Body
Salient aspects of quality of life among women diagnosed with endometriosis
Chronic illness as biographical disruption
| Citation velocity | historical |
|---|---|
| Highly cited | No |