Research Participation as Work
Comparing the Perspectives of Researchers and Economically Marginalized Populations
Bibliographic Data
We examined the historical and regulatory framework of research with human participants in the United States, and described some possible unintended consequences of this framework in the context of paying young injection drug users for their time participating in behavioral and medical research. We drew upon our own experiences while conducting a long-running epidemiological study of hepatitis C virus infection. We found that existing ethical and regulatory framings of research participation may lead to injustices from the perspectives of research participants. We propose considering research participation as a specialized form of work and the use of community advisory boards to facilitate discussion about appropriate compensation for research participation among economically marginalized populations
Compensation (psychology) · Context (archaeology) · Criminology · Drug injection · Economic growth · Economics · Family medicine · Geography · Human immunodeficiency virus (HIV) · Injection drug use · Medical research · Political science · Public relations · Sociology · Unintended consequences · Work (physics) · Ethics in Clinical Research · HIV, Drug Use, Sexual Risk · Law · Medicine · Mental Health and Patient Involvement · Psychology · Social Psychology · Gerontology
The Need to Track Payment Incentives to Participate in HIV Research
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HIV awareness, pre-exposure prophylaxis perceptions and experiences among people who exchange sex
Parent and child co‐resident status among an Australian community‐based sample of methamphetamine smokers
He's under oath”
Confidentiality, Privacy, and Respect
Navigating Ethical Issues in Photovoice
Health literacy in relation to cancer
Level and correlates of social support in a community‐based sample of Australians who primarily smoke methamphetamine
Understanding Willingness to Participate in HIV Biomedical Research
Why female sex workers participate in HIV research
We’re giving you something so we get something in return”
The perspectives of structurally vulnerable people who use drugs on volunteer stipends and work experiences provided through a drug user organization
Research Participation in Substance Use Disorder Trials
What's the Price of a Research Subject? Approaches to Payment for Research Participation
The Moral Economies of Homeless Heroin Addicts
For love or money? An exploratory study of why injecting drug users participate in research
Frame analysis
Frame Analysis. An Essay on the Organization of Experience
Due' and 'Undue' Inducements
Exploring the Ethics of Clinical Research in an Urban Community
| Unique citing works | 14 |
|---|---|
| Citations per year | 1,08 |
| Citation span | 2013 - 2022 (10) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 14 |