Fostering International Collaboration in Birth Defects Research and Prevention

A Perspective From the International Clearinghouse for Birth Defects Surveillance and Research

Bibliographic Data

ID11018581
AuthorsLorenzo D Botto (0000-0002-5322-7116, At the time of the study, Lorenzo D. Botto and Csaba Siffel were with the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, in Atlanta, Georgia; Elisabeth Robert-Gnansia was with the Institut Européen des Génomutations in Lyon, France; John Harris was with the California Birth Defects Monitoring Program in Berkeley, California; Barry Borman was with Public Health Intelligence in Wellington, New Zealand; and Pierpaolo Mastroiacovo was with the...), Elisabeth Robert-Gnansia (At the time of the study, Lorenzo D. Botto and Csaba Siffel were with the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, in Atlanta, Georgia; Elisabeth Robert-Gnansia was with the Institut Européen des Génomutations in Lyon, France; John Harris was with the California Birth Defects Monitoring Program in Berkeley, California; Barry Borman was with Public Health Intelligence in Wellington, New Zealand; and Pierpaolo Mastroiacovo was with the...), Elisabeth Robert‐Gnansia (National Center on Birth Defects and Developmental Disabilities), Csaba Siffel (0000-0002-6491-6953, At the time of the study, Lorenzo D. Botto and Csaba Siffel were with the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, in Atlanta, Georgia; Elisabeth Robert-Gnansia was with the Institut Européen des Génomutations in Lyon, France; John Harris was with the California Birth Defects Monitoring Program in Berkeley, California; Barry Borman was with Public Health Intelligence in Wellington, New Zealand; and Pierpaolo Mastroiacovo was with the...), John Harris (0000-0002-4025-5775, At the time of the study, Lorenzo D. Botto and Csaba Siffel were with the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, in Atlanta, Georgia; Elisabeth Robert-Gnansia was with the Institut Européen des Génomutations in Lyon, France; John Harris was with the California Birth Defects Monitoring Program in Berkeley, California; Barry Borman was with Public Health Intelligence in Wellington, New Zealand; and Pierpaolo Mastroiacovo was with the...), John E Harris (0000-0002-7815-6430, National Center on Birth Defects and Developmental Disabilities), Barry Borman (At the time of the study, Lorenzo D. Botto and Csaba Siffel were with the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, in Atlanta, Georgia; Elisabeth Robert-Gnansia was with the Institut Européen des Génomutations in Lyon, France; John Harris was with the California Birth Defects Monitoring Program in Berkeley, California; Barry Borman was with Public Health Intelligence in Wellington, New Zealand; and Pierpaolo Mastroiacovo was with the...), Pierpaolo Mastroiacovo (0000-0002-8318-8664, At the time of the study, Lorenzo D. Botto and Csaba Siffel were with the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, in Atlanta, Georgia; Elisabeth Robert-Gnansia was with the Institut Européen des Génomutations in Lyon, France; John Harris was with the California Birth Defects Monitoring Program in Berkeley, California; Barry Borman was with Public Health Intelligence in Wellington, New Zealand; and Pierpaolo Mastroiacovo was with the...)
Year2006
Volume96
Issue5
Pages774-780
Publication date2006-05-01
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2004.057760
PMID16571708
PMCIDPMC1470591
OpenAlexW2164632261
LanguageEN
Citations received5
References cited16

The International Clearing-house for Birth Defects Surveillance and Research, formerly known as International Clearinghouse of Birth Defects Monitoring Systems, consists of 40 registries worldwide that collaborate in monitoring 40 types of birth defects. Clearinghouse activities include the sharing and joint monitoring of birth defect data, epidemiologic and public health research, and capacity building, with the goal of reducing disease and promoting healthy birth outcomes through primary prevention. We discuss 3 of these activities: the collaborative assessment of the potential teratogenicity of first-trimester use of medications (the MADRE project), an example of the intersection of surveillance and research; the international databases of people with orofacial clefts, an example of the evolution from surveillance to outcome research; and the study of genetic polymorphisms, an example of collaboration in public health genetics

Environmental health · Family medicine · Public health · Cleft Lip and Palate Research · Folate and B Vitamins Research · Medicine · Nursing · Pregnancy and Medication Impact

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