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Personally Identifiable Information in State Laws

Use, Release, and Collaboration at Health Departments

Bibliographic Data

ID11033690
AuthorsElin B Begley (Elin B. Begley is with the Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, GA. Jamie M. Ware is with S. R. Wojdak & Associates, Philadelphia, PA. Sarah A. Hexem and Kelly Thompson are with the National Nurse-Led Care Consortium, Philadelphia. Karina Rapposelli is with the Centers for Disease Control and Prevention, Office of Public Health Preparedness and Response, Atlanta. Matthew S. Penn is with the Centers for Disease Control...), Elin Begley (0000-0001-5685-0475, The Centers), Jamie M Ware (Elin B. Begley is with the Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, GA. Jamie M. Ware is with S. R. Wojdak & Associates, Philadelphia, PA. Sarah A. Hexem and Kelly Thompson are with the National Nurse-Led Care Consortium, Philadelphia. Karina Rapposelli is with the Centers for Disease Control and Prevention, Office of Public Health Preparedness and Response, Atlanta. Matthew S. Penn is with the Centers for Disease Control...), Sarah A Hexem (Elin B. Begley is with the Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, GA. Jamie M. Ware is with S. R. Wojdak & Associates, Philadelphia, PA. Sarah A. Hexem and Kelly Thompson are with the National Nurse-Led Care Consortium, Philadelphia. Karina Rapposelli is with the Centers for Disease Control and Prevention, Office of Public Health Preparedness and Response, Atlanta. Matthew S. Penn is with the Centers for Disease Control...), Sarah Hexem (The Centers), Karina Rapposelli (Elin B. Begley is with the Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, GA. Jamie M. Ware is with S. R. Wojdak & Associates, Philadelphia, PA. Sarah A. Hexem and Kelly Thompson are with the National Nurse-Led Care Consortium, Philadelphia. Karina Rapposelli is with the Centers for Disease Control and Prevention, Office of Public Health Preparedness and Response, Atlanta. Matthew S. Penn is with the Centers for Disease Control...), Kelly Thompson (0000-0003-2304-8931, Elin B. Begley is with the Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, GA. Jamie M. Ware is with S. R. Wojdak & Associates, Philadelphia, PA. Sarah A. Hexem and Kelly Thompson are with the National Nurse-Led Care Consortium, Philadelphia. Karina Rapposelli is with the Centers for Disease Control and Prevention, Office of Public Health Preparedness and Response, Atlanta. Matthew S. Penn is with the Centers for Disease Control...), Matthew Penn (0000-0002-5376-5299, The Centers), Matthew S Penn (Elin B. Begley is with the Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, GA. Jamie M. Ware is with S. R. Wojdak & Associates, Philadelphia, PA. Sarah A. Hexem and Kelly Thompson are with the National Nurse-Led Care Consortium, Philadelphia. Karina Rapposelli is with the Centers for Disease Control and Prevention, Office of Public Health Preparedness and Response, Atlanta. Matthew S. Penn is with the Centers for Disease Control...), Gustavo A Aquino (Elin B. Begley is with the Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion, Atlanta, GA. Jamie M. Ware is with S. R. Wojdak & Associates, Philadelphia, PA. Sarah A. Hexem and Kelly Thompson are with the National Nurse-Led Care Consortium, Philadelphia. Karina Rapposelli is with the Centers for Disease Control and Prevention, Office of Public Health Preparedness and Response, Atlanta. Matthew S. Penn is with the Centers for Disease Control...)
Year2017
Volume107
Issue8
Pages1272-1276
Publication date2017-08-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueAmerican Journal of Public Health (JOURNAL)
Journal identifiersISSN: 0090-0036 • E-ISSN: 1541-0048
PublisherAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2017.303862
PMID28640676
OpenAlexW2709416302
LanguageEN
Citations received1
References cited7

Despite benefits to sharing data among public health programs, confidentiality laws are often presumed to obstruct collaboration or data sharing. We present an overview of the use and release of confidential, personally identifiable information as consistent with public health interests and identify opportunities to align data-sharing procedures with use and release provisions in state laws to improve program outcomes. In August 2013, Centers for Disease Control and Prevention staff and legal researchers from the National Nurse-Led Care Consortium conducted a review of state laws regulating state and local health departments in 50 states and the District of Columbia. Nearly all states and the District of Columbia employ provisions for the general use and release of personally identifiable information without patient consent; disease-specific use or release provisions vary by state. Absence of law regarding use and release provisions was noted. Health departments should assess existing state laws to determine whether the use or release of personally identifiable information is permitted. Absence of direction should not prevent data sharing but prompt an analysis of existing provisions in confidentiality laws

Business · Confidentiality · Health care · Information privacy · Information sharing · Political science · Privacy laws of the United States · Public health · State (computer science) · Ethics in Clinical Research · Food Security and Health in Diverse Populations · HIV, Drug Use, Sexual Risk · Law · Medicine · Nursing

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Unique citing works1
Citations per year0,5
Citation span2024 - 2024 (1)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 1

Tools

Open DOISci-HubOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae