Ethnicity, bioethics, and prenatal diagnosis
The amniocentesis decisions of Mexican-origin women and their partners
Bibliographic Data
| ID | 11033941 |
|---|---|
| Authors | Carole H Browner (0000-0002-6754-389X, University of California, Los Angeles), H Mabel Preloran (Neurobehavioral Systems), Shanna Cox (0000-0002-0377-9270, Neurobehavioral Systems), S J Cox |
| Year | 1999 |
| Volume | 89 |
| Issue | 11 |
| Pages | 1658-1666 |
| Publication date | 1999-11-01 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | American Journal of Public Health (JOURNAL) |
| Journal identifiers | ISSN: 0090-0036 • E-ISSN: 1541-0048 |
| Publisher | American Public Health Association (PUBLISHER • US) |
| DOI | 10.2105/ajph.89.11.1658 |
| PMID | 10553385 |
| OpenAlex | W1994454675 |
| Language | EN |
| Citations received | 18 |
| References cited | 11 |
Bioethical standards and counseling techniques that regulate prenatal diagnosis in the United States were developed at a time when the principal constituency for fetal testing was a self-selected group of White, well-informed, middle-class women. The routine use of alpha-fetoprotein (AFP) testing, which has become widespread since the mid-1980s, introduced new constituencies to prenatal diagnosis. These new constituencies include ethnic minority women, who, with the exception of women from certain Asian groups, refuse amniocentesis at significantly higher rates than others. This study examines the considerations taken into account by a group of Mexican-origin women who had screened positive for AFP and were deciding whether to undergo amniocentesis. We reviewed 379 charts and interviewed 147 women and 120 partners to test a number of factors that might explain why some women accept amniocentesis and some refuse. A woman's attitudes toward doctors, medicine, and prenatal care and her assessment of the risk and uncertainty associated with the procedure were found to be most significant. Case summaries demonstrate the indeterminacy of the decision-making process. We concluded that established bioethical principles and counseling techniques need to be more sensitive to the way ethnic minority clients make their amniocentesis choices
Amniocentesis · Bioethics · Environmental health · Ethnic group · Family medicine · Fetus · Genetic counseling · Political science · Population · Pregnancy · Prenatal care · Prenatal diagnosis · Ethics and Legal Issues in Pediatric Healthcare · Law · Medicine · Prenatal Screening and Diagnostics · Social and Cultural Studies
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Racial and Ethnic Disparities in the Use of Pregnancy-Related Health Care Among Medicaid Pregnant Women
A Framework for the Development of MaternalQuality of Care Indicators
The subjective value of a life with Down syndrome
Risk and reproductive decisions
It's complicated – Factors predicting decisional conflict in prenatal diagnostic testing
Research ethics for mental health science involving ethnic minority children and youths
Prenatal Genetic Technologies and the Social Control of Pregnant Women
Strategies for Motivating Latino Couples' Participation in Qualitative Health Research and Their Effects on Sample Construction
"Why "public health matters
Interrogating the dynamics between power, knowledge and pregnant bodies in amniocentesis decision making
Reproductive Frontiers
Interpreting Low-Income Latinas’ Amniocentesis Refusals
Give us the full story
Genetic counseling gone awry
Defining Women's Health
Situating Women's Reproductive Activities
Expectations, Emotions, and Medical Decision Making
| Unique citing works | 18 |
|---|---|
| Citations per year | 0,67 |
| Citation span | 1999 - 2016 (18) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 18 |